{"id":29528,"date":"2021-01-26T08:06:27","date_gmt":"2021-01-26T08:06:27","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=29528"},"modified":"2021-01-26T08:07:43","modified_gmt":"2021-01-26T08:07:43","slug":"homebound-versus-bedridden-status-among-those-with-me-cfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/homebound-versus-bedridden-status-among-those-with-me-cfs\/","title":{"rendered":"Homebound versus bedridden status among those with ME\/CFS"},"content":{"rendered":"

Homebound versus bedridden status among those with Myalgic Encephalomyelitis\/ Chronic Fatigue Syndrome,<\/a> by\u00a0 Karl Conroy, Shaun Bhatia, Mohammed Islam and Leonard A Jason in<\/span> Healthcare<\/em> 2021, 9(2), 106 [doi.org\/10.3390\/healthcare9020106]\u00a0(This article belongs to the Special Issue ME\/CFS \u2013 the Severely and Very Severely Affected)<\/p>\n

 <\/p>\n

Research abstract:<\/strong><\/h3>\n

Persons living with myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS) vary widely in terms of the severity of their illness.<\/p>\n

\"\"It is estimated that of those living with ME\/CFS in the United States, about 385,000 are homebound. There is a need to know more about different degrees of being homebound within this severely affected group. The current study examined an international sample of 2138 study participants with ME\/CFS, of whom 549 were severely affected (operationalized as \u2018Homebound\u2019).\u00a0 A subsample of 89 very severely affected participants (operationalized as \u2018Homebound-bedridden\u2019) was also examined.<\/p>\n

The findings showed a significant association between severely and very severely affected participants within the post-exertional malaise (PEM) symptom domain. The implications of these findings are discussed.<\/p>\n

4. Discussion (excerpt)<\/strong>
\nThe findings of the current study indicated that PEM, social functioning, and physical functioning were significant predictors of a participant with ME\/CFS being \u2018Homebound\u2019 (compared to \u2018Not homebound\u2019). Among symptom items in the DSQ-1 PEM domain, \u201cnext day soreness or fatigue after non-strenuous, everyday activity\u201d and \u201cphysically drained or sick after mild activity\u201d were the strongest predictors of \u2018Homebound\u2019 status. These predictive results were consistent with the mean comparisons reported by Pendergrast and colleagues [21].<\/p>\n

Moreover, the unique aspect of our study was subdividing the \u2018Homebound\u2019 group into two subgroups: \u2018Homebound-bedridden\u2019 and \u2018Homebound-not bedridden. We found that higher symptom scores in the PEM domain decreased the odds of a participant being \u2018Homebound-bedridden\u2019 (versus \u2018Homebound-not bedridden\u2019). Among the PEM symptom items, \u201cminimum exercise makes you physically tired\u201d significantly decreased the odds of a participant being \u2018Homebound-bedridden’…<\/p>\n

Our study found that participants who reported worse symptoms in the PEM domain [25] and less physical and social functioning [32] were at increased odds of being \u2018Homebound\u2019 (compared to \u2018Not homebound\u2019). Among participants who were classified as \u2018Homebound,\u2019 those who reported worse symptoms in the PEM domain were at decreased odds of being \u2018Homebound-bedridden\u2019 (compared to \u2018Homebound-not bedridden\u2019). We hypothesized that for participants who are \u2018Homebound,\u2019 those who are \u2018Homeboundbedridden\u2019 may experience less PEM symptomology because they are expending less energy. Based on the proportion of participants who were \u2018Homebound\u2019 in our study, we estimate that as many as 385,000 persons with ME\/CFS are homebound in the United States. There is a pressing need to find ways of providing services to this under-resourced group.<\/p>\n","protected":false},"excerpt":{"rendered":"

Homebound versus bedridden status among those with Myalgic Encephalomyelitis\/ Chronic Fatigue Syndrome, by\u00a0 Karl Conroy, Shaun Bhatia, Mohammed Islam and Leonard A Jason in Healthcare 2021, 9(2), 106 [doi.org\/10.3390\/healthcare9020106]\u00a0(This article belongs to the Special Issue ME\/CFS \u2013 the Severely and … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[2659,2660,813,6489,6488,2241,4904],"class_list":["post-29528","post","type-post","status-publish","format-standard","hentry","category-news","tag-bedbound","tag-housebound","tag-illness-severity","tag-karl-conroy","tag-mohammed-islam","tag-prof-leonard-jason","tag-shaun-bhatia"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-7Gg","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/29528","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=29528"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/29528\/revisions"}],"predecessor-version":[{"id":29552,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/29528\/revisions\/29552"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=29528"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=29528"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=29528"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}