{"id":31885,"date":"2021-07-18T21:29:41","date_gmt":"2021-07-18T20:29:41","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=31885"},"modified":"2021-07-18T21:29:41","modified_gmt":"2021-07-18T20:29:41","slug":"research-causal-attributions-perceived-stigma-for-me-cfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/research-causal-attributions-perceived-stigma-for-me-cfs\/","title":{"rendered":"Research: Causal attributions &#038; perceived stigma for ME\/CFS"},"content":{"rendered":"<h3><a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/13591053211027631\" target=\"_blank\" rel=\"noopener\">Causal attributions and perceived stigma for myalgic encephalomyelitis\/ chronic fatigue syndrome<\/a>, by Laura Froehlich, Daniel BR Hattesohl, Joseph Cotler, \u00a0Leonard A Jason , Carmen Scheibenbogen, Uta Behrends <span style=\"text-decoration: underline;\">in<\/span> <em>Journal of Health Psychology<\/em>, July 9 2021 [doi.org\/10.1177\/13591053211027631]<\/h3>\n<p>&nbsp;<\/p>\n<h3><strong>Research abstract:<\/strong><\/h3>\n<p>Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS) is a chronic disease with the hallmark symptom of post-exertional malaise. Evidence for physiological causes is converging, however, currently no diagnostic test or biomarker is available.<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-25110 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/03\/girl-crosshairs-pointing.jpg?resize=300%2C200&#038;ssl=1\" alt=\"\" width=\"300\" height=\"200\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/03\/girl-crosshairs-pointing.jpg?resize=300%2C200&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/03\/girl-crosshairs-pointing.jpg?resize=1024%2C682&amp;ssl=1 1024w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/03\/girl-crosshairs-pointing.jpg?resize=150%2C100&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/03\/girl-crosshairs-pointing.jpg?resize=768%2C512&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/03\/girl-crosshairs-pointing.jpg?w=1280&amp;ssl=1 1280w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/200;\" \/>People with ME\/CFS experience <a href=\"https:\/\/me-pedia.org\/wiki\/Stigma_and_discrimination\" target=\"_blank\" rel=\"noopener\">stigmatization<\/a>, including the perception that the disease is psychosomatic. In a sample of 499 participants with self-diagnosed ME\/CFS, we investigated perceived stigma as a pathway through which perceived others\u2019 causal attributions relate to lower satisfaction with social roles and activities and functional status.<\/p>\n<p>Higher perceived attributions by others to controllable and unstable causes predicted lower health-related and social outcomes via higher perceived stigma.<\/p>\n<h3><strong>The role of perceived stigma for ME\/CFS<\/strong><\/h3>\n<p>&#8230; health-related quality of life outcomes were worse for people with ME\/CFS who thought that others in their social environment viewed them as responsible for their condition and viewed the condition as likely to change. In turn, when people with ME\/CFS perceived this pattern of others\u2019 attributions, they also felt more stigmatized by these other people. Results were consistent except for non-significant direct and indirect effects for vitality. This might be explained by the fact that vitality items measure energy and exhaustion, which are closely tied to ME\/CFS symptoms.<\/p>\n<p>The perception that others view the illness as controllable and changeable indirectly predicted lower health-related quality of life for people with ME\/CFS.<\/p>\n<p>This result highlights that perceived stigma is a relevant process in ME\/CFS: In line with basic stigma definitions&#8230; ME\/CFS is perceived as:<\/p>\n<ul>\n<li><strong> discrediting<\/strong> (e.g. participants reported feeling embarrassed because of their disease) and<\/li>\n<li>leads to <strong>social exclusion<\/strong> (e.g. participants reported being left out and avoided because of their disease).<\/li>\n<li>In turn, perceived stigma was not only related to lower functional status, but participants also reported being <strong>less satisfied with their social roles<\/strong> (e.g. being bothered by their limitations to socialize and meet the needs of family and friends)<\/li>\n<li>and <strong>activities<\/strong> (e.g. not being satisfied with the amount of household and leisure activities they can do).<\/li>\n<\/ul>\n<p>Consequently, the social perceptions of ME\/CFS are relevant to patients\u2019 health and relationships. Findings point to pathways to improve the health-related and social situation of ME\/CFS patients:<\/p>\n<ul>\n<li>Further education of health practitioners and the public about physiological causes of ME\/CFS could improve the situation for patients.<\/li>\n<li>A widespread, evidence-based conception of ME\/CFS as a physical condition could also increase the fit between illness perceptions by patients and their social environment, which in turn could reduce the negative consequences associated with ME\/CFS (e.g. unsupportive social interactions, suicidal ideation).<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Causal attributions and perceived stigma for myalgic encephalomyelitis\/ chronic fatigue syndrome, by Laura Froehlich, Daniel BR Hattesohl, Joseph Cotler, \u00a0Leonard A Jason , Carmen Scheibenbogen, Uta Behrends in Journal of Health Psychology, July 9 2021 [doi.org\/10.1177\/13591053211027631] &nbsp; Research abstract: Myalgic &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/research-causal-attributions-perceived-stigma-for-me-cfs\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[4267,6879,4614,6880,2241,296,6878],"class_list":["post-31885","post","type-post","status-publish","format-standard","hentry","category-news","tag-carmen-scheibenbogen","tag-daniel-br-hattesohl","tag-joseph-cotler","tag-laura-froehlich","tag-prof-leonard-jason","tag-stigma","tag-uta-behrends"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-8ih","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/31885","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=31885"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/31885\/revisions"}],"predecessor-version":[{"id":31990,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/31885\/revisions\/31990"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=31885"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=31885"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=31885"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}