{"id":32206,"date":"2021-08-08T10:06:00","date_gmt":"2021-08-08T09:06:00","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=32206"},"modified":"2021-08-08T10:09:19","modified_gmt":"2021-08-08T09:09:19","slug":"make-severe-me-visible-severe-me-day-sun-8-aug-2021","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/make-severe-me-visible-severe-me-day-sun-8-aug-2021\/","title":{"rendered":"Make severe ME visible – Severe ME day, Sun 8 Aug 2021"},"content":{"rendered":"

Making severe ME visible<\/strong><\/h2>\n

 <\/p>\n

\"\"An estimated 25% of people with ME are so ill they rarely leave their homes or beds.<\/p>\n

They feel invisible and ignored.<\/p>\n

On Severe ME day each year, 8th August, we make a special effort to recognise the hidden struggles of the 50,000+ in Wales, and the millions worldwide, who are severely affected with Myalgic Encephalomyelitis (ME).<\/p>\n

 <\/p>\n

~<\/p>\n

This year the creative skills of those who are house bound are being showcased in online galleries:<\/strong><\/h3>\n

 <\/p>\n

Severe ME Art Project<\/a>– \u00a0an online gallery of work from writers, artists, photographers, video makers and other creatives, from #MEAction\"\"<\/a><\/p>\n

Underexposed<\/a>, ME Photography Exhibition at seeMEexpo<\/a><\/p>\n

\"\"<\/p>\n

“This exhibit is dedicated to Whitney Dafoe, a young, adventurous, award winning photographer and film maker before developing an extremely severe form of ME\/CFS…<\/p>\n

While trapped within a tortured body, hidden away in a darkened room, his life was stripped right down to a single purpose. To stay alive.<\/p>\n

…Whitney\u2019s purpose was a powerful one. By staying alive, he gave hope to millions of patients worldwide. Since Whitney\u2019s diagnosis, his father, Ronald Davis, a professor of Biochemistry and Genetics and award winning researcher, has devoted his life to finding a cure for ME\/CFS in a desperate bid to save his son and millions like him.<\/p>\n

By staying alive, Whitney saved lives.”<\/p>\n

 <\/p>\n

For more information<\/strong> about severe ME and how to care for those living with it see Severe ME care resources<\/a> on the WAMES website.<\/p>\n

See also<\/strong>: WAMES volunteer with ME: Michelle<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Making severe ME visible   An estimated 25% of people with ME are so ill they rarely leave their homes or beds. They feel invisible and ignored. On Severe ME day each year, 8th August, we make a special effort … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[153,36,6943,1083,2240,6942],"class_list":["post-32206","post","type-post","status-publish","format-standard","hentry","category-news","tag-carers","tag-severe-me","tag-severe-me-artists-project","tag-severe-me-day","tag-the-invisible","tag-underexposed"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-8ns","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/32206","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=32206"}],"version-history":[{"count":10,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/32206\/revisions"}],"predecessor-version":[{"id":32329,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/32206\/revisions\/32329"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=32206"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=32206"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=32206"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}