{"id":33110,"date":"2021-10-12T15:17:33","date_gmt":"2021-10-12T14:17:33","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=33110"},"modified":"2021-10-12T15:17:33","modified_gmt":"2021-10-12T14:17:33","slug":"dr-muirhead-the-medical-profession-have-massively-underestimated-hidden-disease","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/dr-muirhead-the-medical-profession-have-massively-underestimated-hidden-disease\/","title":{"rendered":"Dr Muirhead: “the medical profession have massively underestimated hidden disease”"},"content":{"rendered":"

What long COVID awareness means for people with chronic illnesses<\/strong><\/h2>\n

 <\/p>\n

Dr Nina Muirhead is quoted in an article<\/a> by Rachel Charlton-Dailey on the Verywell Health website, September 29, 2021<\/h3>\n

 <\/p>\n

Hopeful for more acceptance and understanding<\/span><\/strong><\/h3>\n

\"\"There is hope in the chronic illness community that interest in long COVID will also trickle down into more acceptance and a better understanding of other illnesses.<\/p>\n

\u201cWhilst it feels frustrating…I think that the wave of interest in long COVID will pull up all the little boats of chronic conditions,\u201d\u00a0Nina Muirhead, MRCS, DOHNS,<\/a>\u00a0director of\u00a0Doctors with M.E.<\/a>, tells Verywell.<\/p>\n

Muirhead hopes that long COVID will make \u201cpatient experts more culturally acceptable.\u201d<\/p>\n

What Is a Patient Expert?<\/strong>
\nPatient experts are those who have significant knowledge of their disease and treatment in addition to self-management skills. Medical teams will sometimes lean on patient experts as educators for other patients and as a person to provide feedback on care delivery.<\/em><\/p>\n

\n

\u201cDoctors can\u2019t be expected to know everything,\u201d Muirhead says. But at the same time, once they\u2019ve done all the tests and ruled out what they think a patient\u2019s options might be, healthcare providers shouldn\u2019t \u201cturn around and tell the patient they\u2019re making up [their condition],\u201d she adds.<\/p>\n

As a doctor who has a chronic illness herself, Muirhead acknowledges she is in a unique position.<\/p>\n

\u201cIt was only by being on the patient side that I realized the medical profession have massively underestimated hidden disease,\u201d she says. \u201cI was completely ignorant to the knowledge gap between where I stood, and where [the patient] sat.\u201d<\/p>\n

Though it has been difficult for disabled and chronically ill people to see long COVID garner attention and resources their illnesses have never received, the prevailing sentiment is one of goodwill.<\/p>\n<\/div>\n

\n
\n

Read the full article<\/strong> <\/a>for more views from a researcher about long COVID and other people with ME.<\/p>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

What long COVID awareness means for people with chronic illnesses   Dr Nina Muirhead is quoted in an article by Rachel Charlton-Dailey on the Verywell Health website, September 29, 2021   Hopeful for more acceptance and understanding There is hope … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[4680,6196],"class_list":["post-33110","post","type-post","status-publish","format-standard","hentry","category-news","tag-dr-nina-muirhead","tag-long-covid"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-8C2","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/33110","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=33110"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/33110\/revisions"}],"predecessor-version":[{"id":33149,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/33110\/revisions\/33149"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=33110"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=33110"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=33110"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}