{"id":35129,"date":"2022-05-05T08:55:48","date_gmt":"2022-05-05T07:55:48","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=35129"},"modified":"2022-05-05T11:08:42","modified_gmt":"2022-05-05T10:08:42","slug":"take-action-what-should-the-world-learnfromme","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/take-action-what-should-the-world-learnfromme\/","title":{"rendered":"Take Action! What should the world #LearnFromME?"},"content":{"rendered":"

Take Action for #WorldME day!<\/strong><\/span><\/h2>\n

 <\/p>\n

What should the world #LearnFromME?<\/span><\/strong><\/h3>\n

\"\"<\/p>\n

WAMES is proudly supporting World ME Day on the 12th of May, only 1 week away. As part of this year\u2019s theme, #LearnFromME<\/strong>, the World ME Alliance has released a series of actions to help you make an impact. We invite people in Wales to join us in taking part.<\/p>\n

Are you going to take action and help the world #LearnFromME?<\/strong><\/h3>\n

If so, how much time do you have?\u00a0 60 seconds, 5 minutes or longer?<\/p>\n

\u00a060 seconds:<\/strong><\/span><\/h3>\n

Action 1<\/strong>:\u00a0Post to social media and use your networks to spread awareness.<\/p>\n

Tweet<\/strong><\/a>\u00a0 \u00a0 \u00a0 \u00a0<\/strong>Post via Facebook<\/strong><\/a>\u00a0 \u00a0 \u00a0 <\/strong>Share via LinkedIn<\/strong><\/a><\/p>\n

Action 2:\u00a0<\/strong>Ask a healthcare professional to take 5 minutes to #LearnFromME. Do you know someone who works in healthcare? Send them a message today asking them to do their bit for World ME Day and read one of the recently produced guidelines. Ask them to visit\u00a0www.worldmeday.org<\/a>\u00a0to find out more.<\/p>\n

Action 3:\u00a0<\/strong>Tag a politician in your social media post about World ME Day. It\u2019s so important to reach those in power and ask them to #LearnFromME on May 12th.<\/p>\n

Action 4:\u00a0<\/strong>Donate to our work here<\/a> WAMES and the the work of the Alliance here<\/a>.<\/p>\n

5 minutes<\/strong><\/span><\/h3>\n

\"\"<\/strong><\/p>\n

Action 1:\u00a0<\/strong>Create your own custom poster! There are templates with easy instructions on how to add information to produce your own poster. Then just save your poster and share it to social media, with friends and family. Below are some that have been made already.<\/p>\n

Create your poster<\/strong><\/a><\/p>\n

 <\/p>\n

\"\"Action 2:\u00a0<\/strong>We need to reach the people with power to make difference \u2013 that means healthcare professionals and politicians.<\/p>\n

Use your custom poster to reach out to someone in power. Send it to a healthcare professional or politician and ask them to take action to #LearnFromME<\/strong> this World ME Day.<\/p>\n

<\/h3>\n

Longer:<\/span><\/strong><\/h3>\n

Action 1:\u00a0<\/strong>One way we can make a major impact is to tell our stories to a bigger audience. To do this, we need to get into the press<\/strong>. That could be a local newspaper, a university news site, online websites, a radio or tv program. It could have a huge readership or a small one, but it will still be worthwhile.<\/p>\n

This action takes more energy and time, but could reach loads of people. Here is a guide to pitching your story to the press. Download and send your first pitch today.\u00a0 \u00a0 Download the guide and tell your story<\/a><\/p>\n

Action 2:<\/strong><\/p>\n

You could have a longer term impact by getting involved in an organisation near you. WAMES and all Welsh ME organisations<\/a> are entirely volunteer run. Reach out to an organisation near you and offer to volunteer today.\u00a0 \u00a0Find an organisation to get involved in worldwide.<\/a><\/p>\n

Actions for Healthcare Professionals<\/strong><\/span><\/h3>\n

As a healthcare professional it is vital that you understand the principles of care for people with ME.<\/p>\n

Two new guidelines have been published in the last year that completely redefine best practice. This World ME Day, we are asking you to take the time to read one of these guidelines.<\/p>\n

ME\/CFS: diagnosis and management – NICE<\/a><\/p>\n

ME\/CFS: Essentials of Diagnosis and Management \u2013 Mayo Clinic Proceedings<\/a><\/p>\n

\"\"<\/p>\n

 <\/p>\n

We are excited to be participating in all of these actions alongside other organisations and individuals from across the globe.<\/p>\n

 <\/p>\n

Find out more about what other organisations are doing around the world at worldmeday.org<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Take Action for #WorldME day!   What should the world #LearnFromME? WAMES is proudly supporting World ME Day on the 12th of May, only 1 week away. As part of this year\u2019s theme, #LearnFromME, the World ME Alliance has released … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-35129","post","type-post","status-publish","format-standard","hentry","category-news"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-98B","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/35129","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=35129"}],"version-history":[{"count":10,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/35129\/revisions"}],"predecessor-version":[{"id":35158,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/35129\/revisions\/35158"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=35129"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=35129"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=35129"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}