{"id":3564,"date":"2014-08-06T19:48:52","date_gmt":"2014-08-06T19:48:52","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=3564"},"modified":"2022-08-07T10:01:15","modified_gmt":"2022-08-07T09:01:15","slug":"me-cover-up-severe-me-day-august-8th-2014","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/me-cover-up-severe-me-day-august-8th-2014\/","title":{"rendered":"ME Cover up &#8211; Severe ME Day August 8th 2014"},"content":{"rendered":"<h2 style=\"text-align: center;\"><strong>the ME cover up<\/strong><\/h2>\n<p>Many people with ME feel they are invisible to the outside world and that ME is not taken seriously.<\/p>\n<p>&#8220;We may not be able to present ourselves to the world because of severe ill health but we want to be listened to and heard by the appropriate authorities and to receive services, and appropriate help.<\/p>\n<p>We would also like to see more biomedical research undertaken, and cognisance taken of the body of biomedical research that exists at present.<\/p>\n<p>We want the medical profession and general public to understand the seriousness of the illness and remember that underneath the sheet there is still a human being.&#8221;<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"aligncenter size-medium wp-image-36151 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2014\/08\/ME-cover-up-2014.jpg?resize=213%2C300&#038;ssl=1\" alt=\"\" width=\"213\" height=\"300\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2014\/08\/ME-cover-up-2014.jpg?resize=213%2C300&amp;ssl=1 213w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2014\/08\/ME-cover-up-2014.jpg?resize=107%2C150&amp;ssl=1 107w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2014\/08\/ME-cover-up-2014.jpg?w=437&amp;ssl=1 437w\" data-sizes=\"(max-width: 213px) 100vw, 213px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 213px; --smush-placeholder-aspect-ratio: 213\/300;\" \/><\/p>\n<ul>\n<li>See pics of people covered up to highlight being invisible\u00a0on the <a title=\"Stonebird severe me day \" href=\"http:\/\/stonebird.co.uk\/archive\/aug8\/\" target=\"_blank\" rel=\"noopener\">Stonebird<\/a> and <a title=\"25 ME group severe me day\" href=\"http:\/\/www.25megroup.org\/campaigning_Severe_ME_Day.html#severe14\" target=\"_blank\" rel=\"noopener\">25% ME Group<\/a> websites. Post your own on the WAMES FB or twitter sites.<\/li>\n<li>You are invited to light virtual candles on the <a title=\"severe me 14 page\" href=\"http:\/\/www.gratefulness.org\/candles\/candles.cfm?l=eng&amp;gi=ME+14\" target=\"_blank\" rel=\"noopener\">Severe ME 14 Group Page <\/a>of the Gratefulness website, to remember those with severe ME. Candles stay alight for 48 hrs.<\/li>\n<li>You are invited to <a title=\"Sally just me black dress page\" href=\"http:\/\/sallyjustme.blogspot.fr\/2014\/08\/blackdress.html%20\" target=\"_blank\" rel=\"noopener\">wear a black dress to raise awareness for those suffering <\/a>in darkened rooms, and post a selfie on social media.<\/li>\n<li>Share your pictures and feelings on the <a title=\"FB sever me\" href=\"https:\/\/www.facebook.com\/severeme%20\" target=\"_blank\" rel=\"noopener\">Severe ME FB site<\/a><\/li>\n<li>Write to\u00a0or email <a title=\"NHS wales services directory\" href=\"http:\/\/www.wales.nhs.uk\/ourservices\/directory\" target=\"_blank\" rel=\"noopener\">your local Health Board<\/a>, or post a poster on their FB pages\u00a0to highlight those invisible sufferers\u00a0with severe ME.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>the ME cover up Many people with ME feel they are invisible to the outside world and that ME is not taken seriously. &#8220;We may not be able to present ourselves to the world because of severe ill health but &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/me-cover-up-severe-me-day-august-8th-2014\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[1083],"class_list":["post-3564","post","type-post","status-publish","format-standard","hentry","category-news","tag-severe-me-day"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-Vu","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/3564","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=3564"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/3564\/revisions"}],"predecessor-version":[{"id":36152,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/3564\/revisions\/36152"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=3564"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=3564"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=3564"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}