{"id":36153,"date":"2022-08-07T19:29:36","date_gmt":"2022-08-07T18:29:36","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=36153"},"modified":"2022-08-07T19:37:43","modified_gmt":"2022-08-07T18:37:43","slug":"severe-me-day-august-8th-2022-brain-fog","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/severe-me-day-august-8th-2022-brain-fog\/","title":{"rendered":"Severe ME Day August 8th 2022 &#8211; Brain Fog"},"content":{"rendered":"<h2><strong>Severe ME Day 2022<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<h3><strong>Every year we take time on August 8th to remember everyone who is suffering from, or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. <\/strong><\/h3>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"size-medium wp-image-36158 alignleft lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Severe-ME-Day-WMEA-Unable-to-process-thoughts.png?resize=300%2C300&#038;ssl=1\" alt=\"\" width=\"300\" height=\"300\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/300;\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>This year we join with people around the world to highlight &#8216;brain fog&#8217;, a problem all people with ME can experience, but which is particularly disabling for those who are severely affected.<\/p>\n<p style=\"padding-left: 40px;\"><em>Brain fog &#8211; a type of cognitive impairment &#8211; manifests as impaired working memory and concentration accompanied by difficulty processing complex information. [<\/em><a href=\"https:\/\/me-pedia.org\/wiki\/Brain_fog\" target=\"_blank\" rel=\"noopener\">ME pedia]<\/a><\/p>\n<p>&nbsp;<\/p>\n<blockquote><p><strong>&#8220;Whatever you call it, I just feel stupid. Why can&#8217;t I remember how to brush my teeth? Why can&#8217;t I explain to my carers how I feel? Why have I forgotten what you have said, 2 minutes after you speak? In the fog I just have to hold on to hope, as I wait for more lucid moments.&#8221;\u00a0 \u00a0 \u00a0 (Mary)<\/strong><\/p><\/blockquote>\n<h3><\/h3>\n<h3><strong>Severe ME &#8211; key points<\/strong><\/h3>\n<ul>\n<li><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-36159 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?resize=300%2C300&#038;ssl=1\" alt=\"\" width=\"300\" height=\"300\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?resize=300%2C300&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?resize=150%2C150&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?w=768&amp;ssl=1 768w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/300;\" \/>Around 25% of people with ME are almost completely housebound or bedbound.<\/li>\n<li>What is <a href=\"https:\/\/me-pedia.org\/wiki\/Severe_and_very_severe_ME\" target=\"_blank\" rel=\"noopener\">severe ME<\/a>?<\/li>\n<li>Severe ME Awareness Day was started by <a href=\"https:\/\/25megroup.org\/severe-me-day-2022\" target=\"_blank\" rel=\"noopener\">25% Group<\/a> in 2013<\/li>\n<li>8th August is <a href=\"https:\/\/me-pedia.org\/wiki\/Sophia_Mirza\" target=\"_blank\" rel=\"noopener\">Sophia Mirza<\/a>&#8216;s birthdate, an English woman who died of ME age 32<\/li>\n<li>Severe ME can lead to early <a href=\"https:\/\/me-pedia.org\/wiki\/List_of_deaths_caused_by_myalgic_encephalomyelitis_or_chronic_fatigue_syndrome\" target=\"_blank\" rel=\"noopener\">death<\/a><\/li>\n<li>Being housebound and severely ill has led to many reporting experiencing abuse or neglect<\/li>\n<li>Severe ME Support &amp; activity groups: <a href=\"https:\/\/25megroup.org\/\" target=\"_blank\" rel=\"noopener\">25% Group<\/a>; <a href=\"https:\/\/www.hfme.org\/\" target=\"_blank\" rel=\"noopener\">Hummingbirds Foundation<\/a>; <a href=\"https:\/\/www.meaction.net\/2021\/07\/29\/severe-me-artists-project-gallery\/\" target=\"_blank\" rel=\"noopener\">Severe ME Art Projec<\/a>t; <a href=\"https:\/\/pillowwriters.wordpress.com\/\" target=\"_blank\" rel=\"noopener\">Pillow writers<\/a><\/li>\n<li><a href=\"https:\/\/wames.org.uk\/cms-english\/professionals\/severe-me-care-resources\/\" target=\"_blank\" rel=\"noopener\">ME care resources<\/a><\/li>\n<li>Understanding and coping with brain fog: <a href=\"https:\/\/www.verywellhealth.com\/brain-fibro-fog-causes-symptoms-possible-treatment-716014\" target=\"_blank\" rel=\"noopener\">Very well health<\/a>; <a href=\"http:\/\/www.cfsselfhelp.org\/library\/lifting-fog-treating-cognitive-problems\" target=\"_blank\" rel=\"noopener\">CFS self help<\/a><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Severe ME Day 2022 &nbsp; Every year we take time on August 8th to remember everyone who is suffering from, or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. &nbsp; This year we join with people around &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/severe-me-day-august-8th-2022-brain-fog\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[590,1083],"class_list":["post-36153","post","type-post","status-publish","format-standard","hentry","category-news","tag-brain-fog","tag-severe-me-day"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-9p7","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/36153","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=36153"}],"version-history":[{"count":10,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/36153\/revisions"}],"predecessor-version":[{"id":36175,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/36153\/revisions\/36175"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=36153"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=36153"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=36153"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}