{"id":39037,"date":"2023-05-11T23:17:38","date_gmt":"2023-05-11T22:17:38","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=39037"},"modified":"2023-05-12T08:58:27","modified_gmt":"2023-05-12T07:58:27","slug":"diagnosing-me-cfs-in-people-with-long-covid-us-ccc-statement","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/diagnosing-me-cfs-in-people-with-long-covid-us-ccc-statement\/","title":{"rendered":"Diagnosing ME\/CFS in people with Long COVID: US CCC statement"},"content":{"rendered":"<h2><strong>Diagnosing ME\/CFS in People with Long COVID<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<h3>The US ME\/CFS Clinician Coalition have produced a Consensus Statement about Long COVID.<\/h3>\n<div class=\"et_pb_module et_pb_text et_pb_text_0 et_pb_text_align_left et_pb_bg_layout_light\">\n<div class=\"et_pb_text_inner\">\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-39250 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/05\/US-ME-CFS-Coalition.jpg?resize=300%2C133&#038;ssl=1\" alt=\"\" width=\"300\" height=\"133\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/05\/US-ME-CFS-Coalition.jpg?resize=300%2C133&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/05\/US-ME-CFS-Coalition.jpg?resize=1024%2C454&amp;ssl=1 1024w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/05\/US-ME-CFS-Coalition.jpg?resize=150%2C67&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/05\/US-ME-CFS-Coalition.jpg?resize=768%2C341&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/05\/US-ME-CFS-Coalition.jpg?w=1168&amp;ssl=1 1168w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/133;\" \/><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignnone wp-image-1418 lazyload\" data-src=\"https:\/\/i0.wp.com\/mecfscliniciancoalition.org\/wp-content\/uploads\/2020\/10\/standard_compressed_SARS-CoV-2_without_background-39x40-1.png?resize=25%2C25&#038;ssl=1\" alt=\"\" width=\"25\" height=\"25\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 25px; --smush-placeholder-aspect-ratio: 25\/25;\" \/>\u00a0\u00a0<span class=\"s1\">Since 2020, we\u2019ve been seeing people with Long COVID whose symptoms overlap with ME\/CFS. We recommend you consider ME\/CFS in the differential diagnosis of Long COVID, particularly when post-exertional malaise (PEM) is present. <\/span><\/p>\n<p><span class=\"s1\">It is our clinical impression that early diagnosis and management of PEM and ME\/CFS in these patients may be important in their disease trajectory. For more information, read the\u00a0<strong><a href=\"https:\/\/drive.google.com\/file\/d\/1GUsvOU38BSV0P9MEJUeDoCLubRcxHVg_\/view?usp=share_link\">ME\/CFS Clinician Coalition Letter<\/a>.<\/strong><\/span><\/p>\n<\/div>\n<\/div>\n<h3><strong>Excerpt:<\/strong><\/h3>\n<p>By proposing that ME\/CFS be diagnosed by 6 months of illness in relation to symptom onset since acute COVID-19 infection, we aim to do the following:<\/p>\n<ol>\n<li>Improve historically low diagnostic rates and prevalence estimates of ME\/CFS<\/li>\n<li>Initiate earlier therapy in those with ME\/CFS following COVID<\/li>\n<li>More accurately assess the initial ME\/CFS state (&lt;3 years), thereby improving opportunities for early intervention and recovery prospects<\/li>\n<\/ol>\n<p>Early recognition of ME\/CFS and its common comorbidities can expedite the use of helpful therapies in Long COVID (14,15). For example, patients with ME\/CFS following COVID report improvement when pacing \u2013 a form of activity management based on symptom-contingent energy allocation to reduce flares \u2013 is implemented.<\/p>\n<p>Even if full ME\/CFS criteria are not met, we still recommend that any Long COVID patient with classic signs of post-exertional malaise (post exertional symptom exacerbation) engage in paced activity to reduce exercise-induced progression.<\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1GUsvOU38BSV0P9MEJUeDoCLubRcxHVg_\/view\" target=\"_blank\" rel=\"noopener\">Read the full letter<\/a><\/p>\n<p><strong>About the ME\/CFS Clinician coalition<\/strong><br \/>\nThe Coalition is committed to improving clinical care for patients with ME\/CFS by advancing best clinical practices, providing education for the medical community, expanding the pool of medical providers with strong expertise in ME\/CFS, and providing clinical insights for researchers.\u00a0 <a href=\"https:\/\/mecfscliniciancoalition.org\/\" target=\"_blank\" rel=\"noopener\">Find out more<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Diagnosing ME\/CFS in People with Long COVID &nbsp; The US ME\/CFS Clinician Coalition have produced a Consensus Statement about Long COVID. \u00a0\u00a0Since 2020, we\u2019ve been seeing people with Long COVID whose symptoms overlap with ME\/CFS. We recommend you consider ME\/CFS &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/diagnosing-me-cfs-in-people-with-long-covid-us-ccc-statement\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":39250,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-39037","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/05\/US-ME-CFS-Coalition.jpg?fit=1168%2C518&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-a9D","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/39037","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=39037"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/39037\/revisions"}],"predecessor-version":[{"id":39252,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/39037\/revisions\/39252"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media\/39250"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=39037"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=39037"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=39037"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}