{"id":40348,"date":"2023-08-08T10:21:16","date_gmt":"2023-08-08T09:21:16","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=40348"},"modified":"2023-08-08T10:21:16","modified_gmt":"2023-08-08T09:21:16","slug":"severe-me-caring-for-bedbound-with-me","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/severe-me-caring-for-bedbound-with-me\/","title":{"rendered":"Severe ME: caring for bedbound with ME"},"content":{"rendered":"<h2><strong>Caring for people with ME\/CFS who are bedbound<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<h3>Emerge Australia has put together a guide to help you care for a loved one who is severely impacted by ME\/CFS and has become bedbound<\/h3>\n<p>People who are mostly or entirely bedbound by ME\/CFS may need support with:<\/p>\n<p style=\"padding-left: 40px;\">ME\/CFS leaves some people so unwell that they are not able to manage any activities of daily living without help.<\/p>\n<p style=\"padding-left: 40px;\">They are often extremely sensitive to light, sound and touch, and need total care.<\/p>\n<p style=\"padding-left: 40px;\">They may not be able to speak or may only be able to speak in short bursts.<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright wp-image-40350 size-medium lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/08\/Kara-Jane-quote-Emerge-2023.jpg?resize=300%2C300&#038;ssl=1\" alt=\"\" width=\"300\" height=\"300\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/08\/Kara-Jane-quote-Emerge-2023.jpg?resize=300%2C300&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/08\/Kara-Jane-quote-Emerge-2023.jpg?resize=1024%2C1024&amp;ssl=1 1024w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/08\/Kara-Jane-quote-Emerge-2023.jpg?resize=150%2C150&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/08\/Kara-Jane-quote-Emerge-2023.jpg?resize=768%2C768&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/08\/Kara-Jane-quote-Emerge-2023.jpg?w=1080&amp;ssl=1 1080w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/300;\" \/>While some of the information in the guide is tailored for people living in Australia it also covers the range of<strong> symptoms<\/strong> and <strong>disabilities<\/strong> and the need to work with <strong>healthcare professionals<\/strong> and look out for <strong>changes<\/strong> to the bedbound person&#8217;s condition.<\/p>\n<p>Also included are practical tips for helping with activities of daily living:<\/p>\n<ul>\n<li>bathing<\/li>\n<li>toileting<\/li>\n<li>tooth brushing<\/li>\n<li>dressing<\/li>\n<li>eating and drinking<\/li>\n<li>moving and better positioning to protect the person from pressure ulcers,\u00a0contractures, skin and joint irritation, and poor alignment<\/li>\n<li>mobility and transfers to protect both the carer and person with ME\/CFS from injury due to lifting and turning<\/li>\n<li>setting up the room to protect the person from unnecessary physical, cognitive or emotional exertion<\/li>\n<li>Support and socialising<\/li>\n<\/ul>\n<p><strong>Read<\/strong> the 8 page guide <a href=\"https:\/\/emerge.org.au\/wp-content\/uploads\/2023\/04\/caringforpeoplewithmecfswhoarebedbound.pdf\" target=\"_blank\" rel=\"noopener\">online<\/a><\/p>\n<p><strong>Download<\/strong> <a href=\"https:\/\/emerge.org.au\/wp-content\/uploads\/2023\/04\/caringforpeoplewithmecfswhoarebedbound.pdf\" target=\"_blank\" rel=\"noopener\">the pdf<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Caring for people with ME\/CFS who are bedbound &nbsp; Emerge Australia has put together a guide to help you care for a loved one who is severely impacted by ME\/CFS and has become bedbound People who are mostly or entirely &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/severe-me-caring-for-bedbound-with-me\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-40348","post","type-post","status-publish","format-standard","hentry","category-news"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-auM","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/40348","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=40348"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/40348\/revisions"}],"predecessor-version":[{"id":40354,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/40348\/revisions\/40354"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=40348"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=40348"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=40348"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}