{"id":40797,"date":"2023-09-19T08:10:57","date_gmt":"2023-09-19T07:10:57","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=40797"},"modified":"2023-09-21T06:48:57","modified_gmt":"2023-09-21T05:48:57","slug":"energy-limiting-conditions-challenging-disbelief-disregard-1","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/energy-limiting-conditions-challenging-disbelief-disregard-1\/","title":{"rendered":"Energy Limiting Conditions: challenging disbelief &#038; disregard (1)"},"content":{"rendered":"<h2><strong>Disbelief and Disregard in health and social care for people with Energy Limiting Conditions (ELC) <\/strong>Part 1<\/h2>\n<p>&nbsp;<\/p>\n<h3>A research project into Energy Limiting Conditions (ELC) wanted to understand the problems people experience getting the support they need from health and social care services.<\/h3>\n<p>&nbsp;<\/p>\n<h3><strong>Project 1<\/strong>:\u00a0<strong>Disbelief and Disregard: The Gendered Experiences of Energy Limiting Chronic Illnesses<\/strong><\/h3>\n<p>This project looked at the experiences of health and social care for people who identify as women, trans men and non-binary people with ELCs.<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignleft wp-image-40819 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/ELC-graphic.jpg?resize=268%2C350&#038;ssl=1\" alt=\"\" width=\"268\" height=\"350\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/ELC-graphic.jpg?resize=230%2C300&amp;ssl=1 230w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/ELC-graphic.jpg?resize=115%2C150&amp;ssl=1 115w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/ELC-graphic.jpg?w=557&amp;ssl=1 557w\" data-sizes=\"(max-width: 268px) 100vw, 268px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 268px; --smush-placeholder-aspect-ratio: 268\/350;\" \/><\/p>\n<p>According to estimates by the Department for Work and Pensions (DWP), 1 in 3 disabled people in the UK experienced impairments in stamina\/breathing\/fatigue.<\/p>\n<p>These experiences are shared by people living with a range of conditions, including neurological, musculoskeletal, and auto-immune diseases, ME\/CFS and fibromyalgia. The COVID-19 pandemic has significantly increased this population.<\/p>\n<div id=\"attachment_40816\" style=\"width: 310px\" class=\"wp-caption alignright\"><a href=\"http:\/\/youtu.be\/AtdpgiNs_xg\"><img data-recalc-dims=\"1\" decoding=\"async\" aria-describedby=\"caption-attachment-40816\" class=\"wp-image-40816 size-medium lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/DIsbelief-and-disregard.jpg?resize=300%2C173&#038;ssl=1\" alt=\"\" width=\"300\" height=\"173\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/DIsbelief-and-disregard.jpg?resize=300%2C173&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/DIsbelief-and-disregard.jpg?resize=150%2C87&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/DIsbelief-and-disregard.jpg?resize=768%2C444&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2023\/09\/DIsbelief-and-disregard.jpg?w=992&amp;ssl=1 992w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/173;\" \/><\/a><p id=\"caption-attachment-40816\" class=\"wp-caption-text\">Watch this summary of experiences<\/p><\/div>\n<p>&nbsp;<\/p>\n<p>They found that many face discrimination, often in the form of not being listened to or believed.<\/p>\n<p>This is compounded by other forms of discrimination such as sexism, racism, transphobia, homophobia and fatphobia.<\/p>\n<p>Disbelief and disregard in interactions with healthcare professionals has significant negative impact on all areas of people\u2019s lives.<\/p>\n<p><a href=\"https:\/\/wames.org.uk\/cms-english\/energy-limiting-conditions-challenging-disbelief-disregard-2\/\" target=\"_blank\" rel=\"noopener\"><strong>Disbelief and disregard: psychological harms<\/strong><\/a><\/p>\n<p><a href=\"http:\/\/disbeliefdisregard.uk\/ba-project\/\" target=\"_blank\" rel=\"noopener\"><strong>Disbelief and disregard project website<\/strong><\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Disbelief and Disregard in health and social care for people with Energy Limiting Conditions (ELC) Part 1 &nbsp; A research project into Energy Limiting Conditions (ELC) wanted to understand the problems people experience getting the support they need from health &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/energy-limiting-conditions-challenging-disbelief-disregard-1\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-40797","post","type-post","status-publish","format-standard","hentry","category-news"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-aC1","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/40797","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=40797"}],"version-history":[{"count":10,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/40797\/revisions"}],"predecessor-version":[{"id":40876,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/40797\/revisions\/40876"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=40797"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=40797"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=40797"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}