{"id":42957,"date":"2024-05-06T17:30:03","date_gmt":"2024-05-06T16:30:03","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=42957"},"modified":"2024-05-06T20:08:09","modified_gmt":"2024-05-06T19:08:09","slug":"welsh-government-nhs-training-for-me-cfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/welsh-government-nhs-training-for-me-cfs\/","title":{"rendered":"Welsh Government on NHS training for ME\/CFS"},"content":{"rendered":"<h2><strong>How will health professionals learn about ME in Wales?<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright wp-image-16075 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/04\/Welsh-gov-square.png?resize=150%2C150&#038;ssl=1\" alt=\"\" width=\"150\" height=\"150\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/04\/Welsh-gov-square.png?w=225&amp;ssl=1 225w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/04\/Welsh-gov-square.png?resize=150%2C150&amp;ssl=1 150w\" data-sizes=\"(max-width: 150px) 100vw, 150px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 150px; --smush-placeholder-aspect-ratio: 150\/150;\" \/>Decades of stigma, misunderstanding and struggle have been experienced by people with ME\/CFS when they have attempted to access healthcare in Wales. Knowing this, and realising that no local medical experts have made themselves known, WAMES has been calling for a national programme of training for health professionals using experts from outside the country. (See <a href=\"https:\/\/wames.org.uk\/cms-english\/me-cfs-delivery-plan-for-wales-wames-proposal\/\" target=\"_blank\" rel=\"noopener\">Delivery plan for Wales proposal<\/a>).<\/p>\n<p>The response from the Welsh Government to North Wales MS, Mark Isherwood&#8217;s Written Questions (see below) about the subject in the Senedd, has been disappointing. Only one course has been run, teaching a <a href=\"https:\/\/bslm.org.uk\/lifestyle-medicine\/what-is-lifestyle-medicine\/\" target=\"_blank\" rel=\"noopener\">Lifestyle medicine<\/a> approach to ME\/CFS. This has 6 pillars: mental wellbeing; minimising harmful substances: healthy relationships; healthy eating; sleep; physical activity!<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignleft size-medium wp-image-12946 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/05\/puzzled-doctor.jpg?resize=200%2C300&#038;ssl=1\" alt=\"\" width=\"200\" height=\"300\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/05\/puzzled-doctor.jpg?resize=200%2C300&amp;ssl=1 200w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/05\/puzzled-doctor.jpg?resize=100%2C150&amp;ssl=1 100w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/05\/puzzled-doctor.jpg?w=266&amp;ssl=1 266w\" data-sizes=\"(max-width: 200px) 100vw, 200px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 200px; --smush-placeholder-aspect-ratio: 200\/300;\" \/>WAMES has been asking for NHS Wales to run widespread training on the 2021 NICE guideline and to encourage its use across the health service. <a href=\"https:\/\/wames.org.uk\/cms-english\/implement-nice-me-cfs-guideline-for-safe-empathetic-equitable-healthcare\/\" target=\"_blank\" rel=\"noopener\"><strong>#ImplementNICEmecfs<\/strong><\/a><\/p>\n<p>Unfortunately WAMES is still hearing about GPs telling patients they have a psychological condition, showing the misunderstanding about ME\/CFS persists. Whenever we talk to Welsh Government and Health Boards they ask for examples of patients&#8217; recent experiences and how often the problems arise.<\/p>\n<h3><strong>Please tell us<em> your<\/em> stories of healthcare so we can advocate for better services.<\/strong><\/h3>\n<ul>\n<li>Does your GP (&amp; others) know about NICE 2021?<\/li>\n<li>Do they understand about PEM?<\/li>\n<li>Do you feel confident about the information and advice you have received?<\/li>\n<\/ul>\n<p>Tell us <a href=\"https:\/\/wames.org.uk\/cms-english\/about-us\/contact-form\/\" target=\"_blank\" rel=\"noopener\">online,<\/a> ring the helpline (029 2051 5061) or email <a href=\"mailto:jan@wames.org.uk\" target=\"_blank\" rel=\"noopener\">jan@wames.org.uk<\/a><\/p>\n<p>Don&#8217;t forget to tell us which Health Board area (and county) you reside in.<\/p>\n<h3><strong>On 16 April 2024 Mark Isherwood MS tabled a <a href=\"https:\/\/record.senedd.wales\/WrittenQuestion\/92480\" target=\"_blank\" rel=\"noopener\">written question<\/a> in the Senedd:<\/strong><\/h3>\n<p><strong>WQ92480\u00a0(e)<\/strong><\/p>\n<p>How many training courses for GPs and health professionals in Wales have been run since the revised myalgic encephalomyelitis\/ chronic fatigue syndrome NICE guideline was published in 2021?<\/p>\n<p><strong>Answered by Cabinet Secretary for Health and Social Care, 19\/04\/2024<\/strong><\/p>\n<p>Since the revised myalgic encephalomyelitis\/chronic fatigue syndrome NICE guideline were published back in 2021, one training course has run in Wales which was attended by 19 delegates. The training was run as a webinar by HEIW in November 2023. The webinar was subsequently published and remains available.<\/p>\n<h3><strong>On 16 April 2024 Mark Isherwood MS tabled <a href=\"https:\/\/record.senedd.wales\/WrittenQuestion\/92481\" target=\"_blank\" rel=\"noopener\">a written question<\/a> in the Senedd:<\/strong><\/h3>\n<p><strong>WQ92481 (e)<\/strong><br \/>\nHave the Welsh Government and local health boards sourced expert myalgic encephalomyelitis\/chronic fatigue syndrome training from outside Wales and if so, from where?<\/p>\n<p><strong>Answered by Cabinet Secretary for Health and Social Care, 19\/04\/2024<\/strong><\/p>\n<p>Dr Nina Muirhead has presented on myalgic encephalomyelitis \/ chronic fatigue syndrome (ME\/CFS) in the past &#8211; however this has not occurred since the pandemic or the publication of the 2021 update by NICE.<\/p>\n<p>Health Education Improvement Wales (HEIW) ran a webinar as part of its Lifestyle Medicine Series on this topic in November 2023.<\/p>\n<p>This training was sourced from within Wales.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>How will health professionals learn about ME in Wales? &nbsp; Decades of stigma, misunderstanding and struggle have been experienced by people with ME\/CFS when they have attempted to access healthcare in Wales. Knowing this, and realising that no local medical &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/welsh-government-nhs-training-for-me-cfs\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-42957","post","type-post","status-publish","format-standard","hentry","category-news"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-baR","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/42957","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=42957"}],"version-history":[{"count":10,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/42957\/revisions"}],"predecessor-version":[{"id":42967,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/42957\/revisions\/42967"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=42957"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=42957"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=42957"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}