{"id":47045,"date":"2025-07-09T12:10:48","date_gmt":"2025-07-09T11:10:48","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=47045"},"modified":"2025-07-11T15:55:25","modified_gmt":"2025-07-11T14:55:25","slug":"severe-me-difrifol-cymru-awareness-raising-in-the-senedd","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/severe-me-difrifol-cymru-awareness-raising-in-the-senedd\/","title":{"rendered":"Severe ME Difrifol Cymru &#8211; awareness raising in the Senedd"},"content":{"rendered":"<h2><strong>Ask your MS to support a debate in the Senedd<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<h3><strong>Welsh Senedd Debate on Severe and Very Severe ME<\/strong><\/h3>\n<p><a href=\"https:\/\/senedd.wales\/people\/adam-price-ms\/\" target=\"_blank\" rel=\"noopener\">Adam Price<\/a>, Member of the Welsh Senedd (MS), has sponsored a motion for debate in the Senedd about provision for Severe and Very Severe ME. The motion has been tabled for consideration by the Business Committee which allocates debate slots. Now we need to get as many MSs as we can to support the motion, to give it the best chance of being selected.<\/p>\n<p><strong><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignleft wp-image-47054 size-medium lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002.png?resize=300%2C212&#038;ssl=1\" alt=\"\" width=\"300\" height=\"212\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002-scaled.png?resize=300%2C212&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002-scaled.png?resize=1024%2C724&amp;ssl=1 1024w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002-scaled.png?resize=150%2C106&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002-scaled.png?resize=768%2C543&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002-scaled.png?resize=1536%2C1086&amp;ssl=1 1536w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002-scaled.png?resize=2048%2C1448&amp;ssl=1 2048w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Severe-ME-Difrifol-Cymru-Logo-002-scaled.png?w=1280&amp;ssl=1 1280w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/212;\" \/>Severe ME Difrifol Cymru<\/strong> is an informal group of people with Severe \/ Very Severe ME and their carers who have got together to support Adam\u2019s motion for debate.<\/p>\n<p>&nbsp;<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"size-medium wp-image-36159 alignright lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?resize=300%2C300&#038;ssl=1\" alt=\"\" width=\"300\" height=\"300\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?resize=300%2C300&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?resize=150%2C150&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2022\/08\/Understanding-Severe-ME-World-ME-Alliance-768x768-1.png?w=768&amp;ssl=1 768w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/300;\" \/>They have managed to book a place in <strong>\u2018Y Farchnad\u2019<\/strong> (\u2018The Marketplace\u2019) on Tuesday July 15th, which is an opportunity once a month for groups to have a stall and display in the Senedd, and to talk to MSs face to face about their cause.<\/p>\n<p>They\u2019ve been required by the Senedd to submit a logo \u2013 so they&#8217;ve\u00a0 had to come up with one! \u2013 and are busy putting together a banner and other display materials.<\/p>\n<p><strong>How can you help?<\/strong><\/p>\n<ul>\n<li>Please email \/ write to \/ phone your local and regional MSs to ask them to drop by the Severe ME Difrifol Cymru stall next Tuesday 11am-2pm in Y Farchnad. <a href=\"https:\/\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Y-Farchnad-Llyfryn-Gorffennaf-July-Booklet.pdf\" target=\"_blank\" rel=\"noopener\">Download the booklet for the event<\/a><\/li>\n<li>Tell them about the Motion ( <a href=\"https:\/\/record.senedd.wales\/Motion\/8884\" target=\"_blank\" rel=\"noopener\">SeneddMotion8884<\/a>) and why it\u2019s important to you that they put their support behind it. <a href=\"https:\/\/wames.org.uk\/cms-english\/wp-content\/uploads\/2025\/07\/Template-email-for-MS-Severe-ME.docx\" target=\"_blank\" rel=\"noopener\">Download template email<\/a><\/li>\n<li>You can find out who your MSs are and their contact details at <a href=\"https:\/\/senedd.wales\/find-a-member-of-the-senedd\/\" target=\"_blank\" rel=\"noopener\">this link <\/a><\/li>\n<\/ul>\n<p><strong>Severe ME Difrifol Cymru<\/strong> is coordinated by Severe ME champion Rob Messenger and supported by WAMES.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Ask your MS to support a debate in the Senedd &nbsp; Welsh Senedd Debate on Severe and Very Severe ME Adam Price, Member of the Welsh Senedd (MS), has sponsored a motion for debate in the Senedd about provision for &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/severe-me-difrifol-cymru-awareness-raising-in-the-senedd\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-47045","post","type-post","status-publish","format-standard","hentry","category-news"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-ceN","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/47045","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=47045"}],"version-history":[{"count":10,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/47045\/revisions"}],"predecessor-version":[{"id":47069,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/47045\/revisions\/47069"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=47045"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=47045"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=47045"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}