{"id":47180,"date":"2025-08-07T19:43:56","date_gmt":"2025-08-07T18:43:56","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=47180"},"modified":"2025-08-07T19:43:56","modified_gmt":"2025-08-07T18:43:56","slug":"severe-me-day-new-clinician-resource-from-wmea","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/severe-me-day-new-clinician-resource-from-wmea\/","title":{"rendered":"Severe ME day: new clinician resource from WMEA"},"content":{"rendered":"
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Supporting people with severe & very severe ME<\/strong><\/h2>\n

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WAMES and the World ME Alliance<\/a> are offering a key resource for Severe ME day on 8 August 2025<\/p>\n

Supporting people with severe & very severe ME: a resource guide for clinicians – <\/strong>read<\/a><\/p>\n

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All over the world, Severe ME patients struggle to get the medical care they need. Too often they are recommended inappropriate psychiatric hospitalisation and dangerous treatments such as Graded Exercise Therapy, while at the same time being denied vital interventions such as intravenous hydration or tube feeding.<\/p>\n

This resource is\u00a0 intended for use in crisis situations <\/strong><\/p><\/blockquote>\n

This resource is intended for use in crisis situations \u2014 particularly when hospitalisation is being considered \u2014 and can be handed to clinicians and healthcare providers by patients or carers. It is designed to support self-advocacy when people with Severe ME may be too unwell to speak for themselves, and to guide healthcare professionals toward safer, more appropriate care.<\/p>\n

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Why This Guide Matters<\/strong><\/div>\n<\/div>\n

Around\u00a025% of people with ME\/CFS are housebound or bedbound<\/strong>. Those most severely affected may:<\/p>\n