{"id":47985,"date":"2026-03-12T12:17:18","date_gmt":"2026-03-12T12:17:18","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=47985"},"modified":"2026-03-12T12:18:14","modified_gmt":"2026-03-12T12:18:14","slug":"me-cfs-services-wales-report-2026-now-available","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/me-cfs-services-wales-report-2026-now-available\/","title":{"rendered":"ME\/CFS Services Wales Report 2026 now available"},"content":{"rendered":"

Services for ME\/CFS in Wales: a Patchwork of Progress, Regional Variations and Gaps<\/strong><\/h2>\n

 <\/p>\n

\"\"WAMES sent out a survey to NHS Wales Adferiad Services in September 2025, and received responses from all 7 Health Boards between\u00a0 October 2025 and\u00a0 January 2026.<\/p>\n

We wanted to know:<\/strong><\/p>\n

\u2666 what stage the development of Services for people with ME\/CFS had reached
\n\u2666\u00a0which ages and illness severity was being catered for
\n\u2666 how the Services operate and can be accessed
\n\u2666 whether the management recommendations from the 2021 NICE guideline for ME\/CFS were being implemented<\/p>\n

All Health Boards responded, though currently only 6 have a Service which offers support to a range of conditions including Long COVID and ME\/CFS.<\/p>\n

\"\"<\/p>\n

Health Boards have been developing their Adferiad services to include ME\/CFS since March 2023 when the Welsh Government allocated extra money for that purpose.<\/p>\n

While it is clear that a lot of progress has been made, the Report reveals that 3 years later Services are at variable stages of development, with 3 still to launch fully. One has launched and closed just over a year later.<\/p>\n

Key findings:<\/strong><\/h3>\n

\u2666 Services do not cater for people of all ages and severities<\/p>\n

\u2666 Referral routes into the services vary. Only 2 services so far accept self referrals<\/p>\n

\u2666 Multidisciplinary teams with varying ranges of specialisms cater for
\nmultiple conditions, not just ME\/CFS.<\/p>\n

\u2666 Services vary in their ability to implement all the NICE guideline
\nmanagement recommendations<\/p>\n

\u2666 There is under-use of ME specific assessment tools and no
\nstandardisation in which other tools are used across services<\/p>\n

\u2666 Availability of information and communication methods vary<\/p>\n

\u2666 Access to diagnosis and confirmation of diagnosis varies.<\/p>\n

\"\"<\/p>\n

The\u00a0Bottom Line<\/strong><\/h3>\n

Welsh services have made progress, but ME\/CFS services remain a
\npatchwork. Without medical national leadership and consistent
\nstandards, tens of thousands of people will continue to fall through the gaps. This isn\u2019t just variation. It\u2019s inequality.<\/p>\n

WAMES is grateful for the cooperation of the Health Boards and will continue to discuss patient needs and ask for equity in healthcare with them, NHS management and the Welsh Government.<\/p>\n

Please help us by continuing to send to WAMES your comments, what you need from a Service and experiences of attending the Services: jan@wames.org.uk<\/a><\/p>\n

Download the report:<\/strong><\/h3>\n

A Patchwork of Progress, Regional Variations and Gaps<\/a><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Services for ME\/CFS in Wales: a Patchwork of Progress, Regional Variations and Gaps   WAMES sent out a survey to NHS Wales Adferiad Services in September 2025, and received responses from all 7 Health Boards between\u00a0 October 2025 and\u00a0 January … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-47985","post","type-post","status-publish","format-standard","hentry","category-news"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-ctX","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/47985","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=47985"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/47985\/revisions"}],"predecessor-version":[{"id":47994,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/47985\/revisions\/47994"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=47985"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=47985"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=47985"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}