{"id":5879,"date":"2015-09-29T07:31:00","date_gmt":"2015-09-29T07:31:00","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=5879"},"modified":"2015-09-29T07:31:43","modified_gmt":"2015-09-29T07:31:43","slug":"effect-on-siblings-of-children-with-cfsme","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/effect-on-siblings-of-children-with-cfsme\/","title":{"rendered":"Effect on siblings of children with CFS\/ME"},"content":{"rendered":"<p><strong>Research abstract:<\/strong><\/p>\n<p>Chronic fatigue syndrome or myalgic encephalomyelitis (CFS\/ME) is a disabling condition known to have a negative impact on all aspects of a child&#8217;s life. However, little is understood about the impact of CFS\/ME on siblings.<\/p>\n<p>A total of 34 siblings completed questionnaires measuring depression (Hospital Anxiety and Depression Scale (HADS)), anxiety (HADS and <a href=\"http:\/\/www.scaswebsite.com\/\" target=\"_blank\">Spence Children&#8217;s Anxiety Scale (SCAS<\/a>)) and European Quality-of-life-Youth (EQ-5D-Y). These scores were compared with scores from normative samples.<\/p>\n<p>Siblings had higher levels of anxiety on the SCAS than adolescents of the same age recruited from a normative sample; however, depression and quality-of-life were similar.<\/p>\n<p>Interviews were undertaken with nine siblings of children with CFS\/ME who returned questionnaires. Interview data were analysed using a framework approach to thematic analysis. Siblings identified restrictions on family life, &#8216;not knowing&#8217; and lack of communication as negative impacts on their family, and change of role\/focus, emotional reactions and social stigma as negative impacts on themselves. They also described positive communication, social support and extra activities as protective factors.<\/p>\n<p>Paediatric services should be aware of the impact of CFS\/ME on the siblings of children with CFS\/ME, understand the importance of assessing paediatric CFS\/ME patients within the context of their family and consider providing information for siblings about CFS\/ME.<\/p>\n<p><a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pubmed\/26395764\" target=\"_blank\">Psychological wellbeing and quality-of-life among siblings of paediatric CFS\/ME patients: A mixed-methods study<\/a>\u00a0by S\u00a0 Velleman, SM Collin, L Beasant, E Crawley\u00a0 <span style=\"text-decoration: underline;\">in<\/span>\u00a0<em>Clin Child Psychol Psychiatry<\/em> 2015 Sep 22. pii: 1359104515602373. [Epub ahead of print]<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS\/ME) is a disabling condition known to have a negative impact on all aspects of a child&#8217;s life. However, little is understood about the impact of CFS\/ME on siblings. A total of &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/effect-on-siblings-of-children-with-cfsme\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[257,258,1074,2077,2075,2076],"class_list":["post-5879","post","type-post","status-publish","format-standard","hentry","category-news","tag-children","tag-paediatric-me","tag-quality-of-life","tag-scas","tag-siblings","tag-spence-childrens-anxiety-scale"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-1wP","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/5879","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=5879"}],"version-history":[{"count":3,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/5879\/revisions"}],"predecessor-version":[{"id":5907,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/5879\/revisions\/5907"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=5879"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=5879"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=5879"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}