{"id":9274,"date":"2016-08-04T06:01:11","date_gmt":"2016-08-04T06:01:11","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=9274"},"modified":"2016-08-04T06:01:11","modified_gmt":"2016-08-04T06:01:11","slug":"key-research-needs-in-mecfs-responses-to-us-request-for-info","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/key-research-needs-in-mecfs-responses-to-us-request-for-info\/","title":{"rendered":"Key research needs in ME\/CFS &#8211; responses to US request for info"},"content":{"rendered":"<p><strong><a href=\"https:\/\/www.nih.gov\/about-nih\" target=\"_blank\">National Institutes of Health<\/a><\/strong> press release, 29 July 2016: <a href=\"https:\/\/www.nih.gov\/research-training\/medical-research-initiatives\/mecfs\/nih-requested-comments-me\/cfs-research-efforts\" target=\"_blank\">NIH Request for Information on ME\/CFS Research Efforts<\/a><\/p>\n<p>On May 24, 2016, the <a href=\"https:\/\/www.nih.gov\/research-training\/medical-research-initiatives\/mecfs\" target=\"_blank\">Trans-NIH ME\/CFS Working Group<\/a> published a\u00a0<a href=\"https:\/\/grants.nih.gov\/grants\/guide\/notice-files\/NOT-NS-16-024.html\" target=\"_blank\">Request for Information <\/a>seeking the public\u2019s input on needs, opportunities and strategies for ME\/CFS research and research training. Comments were invited from researchers, health care providers, patient advocates and health advocacy organizations, scientific or professional organizations, Federal agencies and other parties with an interest in advancing ME\/CFS research efforts.<\/p>\n<p>In particular, the Working Group sought perspective on the following issues related to ME\/CFS research planning efforts:<\/p>\n<ul>\n<li>Emerging needs and opportunities that should be considered as new ME\/CFS research strategies are developed<\/li>\n<li>Challenges or barriers to progress in research on ME\/CFS<\/li>\n<li>Gaps and opportunities across the research continuum from basic through clinical studies<\/li>\n<\/ul>\n<p>This request was for information and planning purposes only. Responses were accepted through June 24, 2016. Follow the links below to read the comments. In all instances, emails and personally identifiable information have been removed. Names of healthcare providers, researchers and representatives from patient organizations remain. [A number of responses came from outside the US]<\/p>\n<p><a href=\"https:\/\/www.nih.gov\/sites\/default\/files\/research-training\/initiatives\/mecfs\/rfi-responses-patients.pdf\" target=\"_blank\">RFI responses from individuals<\/a> pdf<\/p>\n<p><a href=\"https:\/\/www.nih.gov\/sites\/default\/files\/research-training\/initiatives\/mecfs\/rfi-patient-organizations.pdf\" target=\"_blank\">RFI responses from patient advocacy organizations<\/a>\u00a0pdf<\/p>\n<p><a href=\"https:\/\/www.nih.gov\/sites\/default\/files\/research-training\/initiatives\/mecfs\/rfi-healthcare-professionals-researchers.pdf\" target=\"_blank\">RFI responses from researchers and healthcare providers<\/a> pdf<\/p>\n<p><a href=\"https:\/\/www.nih.gov\/sites\/default\/files\/research-training\/initiatives\/mecfs\/rfi-healthcare-professionals-researchers.pdf\" target=\"_blank\"><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>National Institutes of Health press release, 29 July 2016: NIH Request for Information on ME\/CFS Research Efforts On May 24, 2016, the Trans-NIH ME\/CFS Working Group published a\u00a0Request for Information seeking the public\u2019s input on needs, opportunities and strategies for &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/key-research-needs-in-mecfs-responses-to-us-request-for-info\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[1834,1800,1801,2858],"class_list":["post-9274","post","type-post","status-publish","format-standard","hentry","category-news","tag-biomedical-research","tag-national-institutes-of-health","tag-nih","tag-trans-national-institutes-of-health-nih-mecfs-working-group"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-2pA","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/9274","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=9274"}],"version-history":[{"count":1,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/9274\/revisions"}],"predecessor-version":[{"id":9275,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/9274\/revisions\/9275"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=9274"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=9274"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=9274"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}