{"id":9294,"date":"2016-08-08T07:02:26","date_gmt":"2016-08-08T07:02:26","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=9294"},"modified":"2016-08-08T07:02:26","modified_gmt":"2016-08-08T07:02:26","slug":"severe-me-remembrance-day-8-aug-2016","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/severe-me-remembrance-day-8-aug-2016\/","title":{"rendered":"Severe ME Remembrance Day, 8 Aug 2016"},"content":{"rendered":"

Severe Myalgic Encephalomyelitis Understanding and Remembrance Day August 8th 2016<\/span><\/strong><\/h2>\n

\"TrappedWhy have an Understanding and Remembrance Day highlighting the plight of the severely affected?<\/h3>\n

The severity of this illness often makes it impossible for people to have contact with loved ones, doctors, or the outside world.\u00a0 This is a group of thousands of people in the UK who are generally invisible. People with the severe forms of this disease can no longer pursue their careers, hobbies, or everyday lives.<\/p>\n

In helping us to make visible the stories of people living with severe ME, and of those who have died as a result of the illness, you can help end years of misrepresentation about ME and increase the understanding of the general public, who often underestimate the seriousness of the disease. This ignorance causes much suffering to those with M.E., who have a double battle, not only with the disease itself, but also to get the illness taken seriously by those around them. There is an urgent need to raise awareness.<\/p>\n

What’s the significance of 8th August?<\/strong><\/p>\n

This is the birth date of Sophia Mirza<\/span><\/strong>.\u00a0 Sophia was bed-bound with severe Myalgic Encephalomyelitis and was a victim of medical abuse.\u00a0 Her doctors did not believe that Myalgic Encephalomyelitis was a physical disease and so she was forcibly taken from her bed\/home by social workers, police officers and doctors, and kept in a psychiatric facility where she received inappropriate treatment and care.\u00a0 Sophia subsequently died of ME at the age of 32.\u00a0 Her post-mortem revealed widespread inflammation in the spinal cord.\u00a0 This same inexcusable abuse still goes on.<\/p>\n

Emily Collingridge<\/span><\/strong> –\u00a0 17th April 1981 – 18th March 2012<\/p>\n

\u201cWhen our daughter, Emily, died in 2012, my husband and I were overwhelmed by the hundreds of messages of sympathy we received, even from people we did not know.\u00a0 They came from friends, from those expressing gratitude for her endless campaigning to spread awareness of ME and from readers of her guide to living with severe M<\/em>E, many of whom said it had changed their lives.\u201d<\/em><\/p>\n

The inquest into Emily\u2019s death took place on 24th May 2013.\u00a0 In her summary the Coroner referred to ME as a condition which is not understood, and expressed the need for more research.\u00a0 She was echoing an appeal made by Emily in 2011 highlighting what she described as \u201cthe scandalous lack of research into the most severe form of ME and the lack of appropriate support for those suffering from it.\u201d<\/p>\n

A final plea in Emily\u2019s own words.<\/p>\n

\u201cPlease put an end to the abandonment of people with severe ME and give us all real reason to hope\u201d.\u00a0 Emily may have lost her personal battle, but her battle on behalf of all those still suffering from severe ME should not be ignored.”<\/em><\/p>\n

from: 25 percent ME group press release<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Severe Myalgic Encephalomyelitis Understanding and Remembrance Day August 8th 2016 Why have an Understanding and Remembrance Day highlighting the plight of the severely affected? The severity of this illness often makes it impossible for people to have contact with loved … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[1993,2992,1083,2993],"class_list":["post-9294","post","type-post","status-publish","format-standard","hentry","category-news","tag-25-me-group","tag-emily-collingwood","tag-severe-me-day","tag-sophia-mirza"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-2pU","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/9294","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=9294"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/9294\/revisions"}],"predecessor-version":[{"id":9303,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/9294\/revisions\/9303"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=9294"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=9294"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=9294"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}