Author Archives: wames
A life in a day? A poem by Ffion for Severe ME Day
A LIFE IN A DAY …? 8th August 2023: Severe ME Day Rise, Take pain-med. Lie down to recover … Try to read EMail? Lie down to recover … Eat light breakfast, Recline to recover … … Continue reading
Severe ME: caring for bedbound with ME
Caring for people with ME/CFS who are bedbound Emerge Australia has put together a guide to help you care for a loved one who is severely impacted by ME/CFS and has become bedbound People who are mostly or entirely … Continue reading
#EndMalnutrionInME guidelines
Severe ME day – #EndMalnutrionInME guidelines ME needs to be recognised as a risk disease for malnutrition For Severe ME Day 2023 the 25% Group, which represents people with severe ME, say that currently, allied health care professionals are … Continue reading
Video: Very severe ME/CFS
Video: Very severe ME/CFS, from Broken Battery Very Severe ME/CFS is a debilitating condition causing profound suffering and life-threatening symptoms. Patients are in bed all day and dependent on care. They need help with personal hygiene and eating, and … Continue reading
Standing strong-Global ME community is unified in support NICE ME/CFS guideline
Standing strong – Global ME community is unified in firm support for the NICE 2021 ME/CFS guideline WAMES has joined 56 leaders in the ME community from across the globe in writing a rapid response to the July 2023 … Continue reading
Severe ME Day 2023 – #EndmalnutritionInME
#EndMalnutritionInME – Severe ME day August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding light on the often … Continue reading
Research: Impaired balance & physical capacity in ME/CFS & Long COVID
Impaired balance and physical capacity found in both ME/CFS and Long COVID US researchers found that people with long COVID have reduced physical capacity and postural sway similar to people with ME/CFS, despite having the post-viral illness for an … Continue reading
Introducing WAMES volunteer: Caitlin
Hi! I’m Caitlin and I volunteer with WAMES I joined the WAMES team in late 2022. I’m currently progressing into my 3rd year as a Psychology student at university. For one of my previous modules, I had to find … Continue reading
