Author Archives: wames
Severe ME Day 2023 – #EndmalnutritionInME
#EndMalnutritionInME – Severe ME day August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding light on the often … Continue reading
Research: Impaired balance & physical capacity in ME/CFS & Long COVID
Impaired balance and physical capacity found in both ME/CFS and Long COVID US researchers found that people with long COVID have reduced physical capacity and postural sway similar to people with ME/CFS, despite having the post-viral illness for an … Continue reading
Introducing WAMES volunteer: Caitlin
Hi! I’m Caitlin and I volunteer with WAMES I joined the WAMES team in late 2022. I’m currently progressing into my 3rd year as a Psychology student at university. For one of my previous modules, I had to find … Continue reading
Research review: Immune dysfunction in susceptible people leads to the post-viral fatigue syndromes ME/CFS & Long COVID
Immune dysfunction, ME/CFS and long COVID This review of research by the New Zealand research team led by Prof Warren Tate looks at immunological factors that may explain why some patients never recover from viral infections. It argues that … Continue reading
Poem: This road, by Rachel Hazelwood
This Road: (I have walked this road before…..) By Rachel Hazlewood Somewhere faintly whispering in the shadows of my mind Through an erstwhile firmly shuttered door A distant thought – a memory I’d hoped I’d never find I remember: … Continue reading
WAMES says #ImplementNICEmecfs in Wales
WAMES supports NICE guideline implementation in NHS Wales Graded Exercise Therapy and the PACE trial have raised their ugly heads again in an article by Prof Trudie Chalder and friends. They have launched a scathing attack on the ability … Continue reading
NICE ME/CFS guideline is robust & globally supported
WAMES joins global support for ME/CFS NICE guideline On 11th July, a new study was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts … Continue reading
ME the illness: “Mourning the life we’ve lost”
ME the illness: “Mourning the life we’ve lost” The Messenger family have translated the article about them Cyflwr ME: ‘Galaru am fywyd ry’n wedi’i golli‘ posted on Cymru Fyw. “The harmful effect of ME on patients and on … Continue reading
Research review: urinary biomarkers in ME/CFS
Urinary biomarkers for ME/CFS? Although urine would be an easy sample to collect from patients this study found that research into its use as a biomarker for ME/CFS was inconsistent. Studies were limited in size, susceptible to variables, used … Continue reading
