Author Archives: wames

Diagnostic test research: Autoantibodies & receptors correlate with symptom severity, autonomic dysfunction & disability in ME/CFS

Autoantibodies to vasoregulative G-Protein-Coupled receptors correlate with symptom severity, autonomic dysfunction and disability in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Helma Freitag, Marvin Szklarski, Sebastian Lorenz, Franziska Sotzny, Sandra Bauer, Aurélie Philippe, Claudia Kedor, Patricia Grabowski, Tanja Lange, Gabriela Riemekasten, Harald … Continue reading

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House of Lords Q&A: NICE & ME/CFS

The House of Lords, Tuesday 12 October 2021   Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and … Continue reading

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Research: Neurochemical abnormalities in CFS

Neurochemical abnormalities in chronic fatigue syndrome: a pilot magnetic resonance spectroscopy study at 7 Tesla, by Beata R Godlewska, Stephen Williams, Uzay E Emir, Chi Chen, Ann L Sharpley, Ana Jorge Goncalves, Monique I Andersson, William Clarke, Brian Angus, Philip … Continue reading

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Legal challenge to NICE ME/CFS Guideline delay

Legal challenge to NICE ‘pause in publication’   On the 1st October a legal action was launched against NICE, claiming the failure to publish the final guideline for ME/CFS was unlawful – that NICE failed to follow it’s own rules … Continue reading

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NICE releases further details of ME/CFS roundtable meeting

NICE roundtable agenda   Ahead of the roundtable meeting on 18 October, NICE has today (12 October 2021) released details of the agenda and how the meeting will be run.   Publication of the NICE guideline on the diagnosis and … Continue reading

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Dr Muirhead: “the medical profession have massively underestimated hidden disease”

What long COVID awareness means for people with chronic illnesses   Dr Nina Muirhead is quoted in an article by Rachel Charlton-Dailey on the Verywell Health website, September 29, 2021   Hopeful for more acceptance and understanding There is hope … Continue reading

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Non-disclosure order for NICE 18 Oct Roundtable participants

NICE ME/CFS Guideline Roundtable discussion still ‘under wraps’   On 21 September NICE announced the Roundtable would be held on Monday 18th October in London and they would be inviting: “relevant professional organisations to attend the meeting, plus representatives from … Continue reading

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Research review: ME/CFS: a neurological entity?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A neurological entity?, by Inigo Murga Gandasegui, Larraitz Aranburu Laka, Pascual-Angel Gargiulo, Juan-Carlos Gomez-Esteban, Jose-Vicente Lafuente Sanchez in Medicina Vol 57, #10, p 1030, Sep 27, 2021 [doi.org/10.3390/medicina57101030]   Review abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) … Continue reading

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IAfME expands & relaunches as World ME Alliance

International Alliance for ME becomes the World ME Alliance As a founding member of IAfME, WAMES is excited to be part of the development and launch of the World ME Alliance. The Alliance is the only organisation in the world … Continue reading

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Research: A comprehensive examination of severely ill ME/CFS patients

A comprehensive examination of severely ill ME/CFS patients, by Chia-Jung Chang, Li-Yuan Hung, Andreas M. Kogelnik, David Kaufman, Raeka S Aiyar, Angela M Chu, Julie Wilhelmy, Peng Li, Linda Tannenbaum, Wenzhong Xiao, Ronald W Davis in Healthcare Vol 9, #10, p … Continue reading

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