Author Archives: wames

Unexplained exertional intolerance associated with impaired systemic oxygen extraction

The researchers reviewed invasive cardiopulmonary test results of 313 patients with unexplained exertional intolerance. The paper focuses mainly on a small subset of patients: “We identified a cohort of patients whose exercise limitation is due only to systemic oxygen extraction, … Continue reading

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ME support group meets Montgomery 18 Sep 2019

You are invited to join people with ME and their carers for a chat and a cuppa at the Dragon Hotel, Montgomery, Powys on Wednesday 18 September 2019 between 2.30 and 3.30pm. Contact Donna Teague beforehand to confirm the meeting … Continue reading

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Survey of the experiences of children & young people with ME for NICE

The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading

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Petition to European Parliament by Evelien Van Den Brink (Dutch) on a request for funding for biomedical research on ME

European Parliament 2019-2024   –    Committee on Petitions 30.8.2019 NOTICE TO MEMBERS Subject: Petition No 0204/2019 by Evelien Van Den Brink (Dutch) on a request for funding for biomedical research on Myalgic Encephalomyelitis 1. Summary of petition The petitioner refers to … Continue reading

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ACTivate your life well-being course begins Ebbw Vale, 17 Sep 2019

ACTtivate Your Life course in Ebbw Vale a four session course that aims to teach people about stress and suffering caused by emotional issues and offers a slightly different approach to more conventional methods of dealing with emotional and physical problems. … Continue reading

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Faecal Microbiome Transplantation (FMT) a promising treatment for CFS with IBS

A retrospective outcome study of 42 patients with Chronic Fatigue Syndrome, 30 of whom had Irritable Bowel Syndrome. Half were treated with oral approaches, and half were treated with faecal microbiome transplantation, by JN Kenyon, Shelly Coe, Hooshang Izadi in Human … Continue reading

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How best to advance ME/CFS research

Responses to Request for Information: Soliciting Input on How Best to Advance Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research in the National Institute of Neurological Disorders and Stroke blog, USA, 20 Aug 2019 Purpose: In 2018 the National Institute of Neurological … Continue reading

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Inflammatory proteins are altered in CFS

Inflammatory proteins are altered in chronic fatigue syndrome – a systematic review and meta-analysis, by Rebecca Strawbridge, Maria-Laura Sartor, Fraser Scott, Anthony J Cleare in Neuroscience & Biobehavioral Reviews, August 26, 2019 [https://doi.org/10.1016/j.neubiorev.2019.08.011]   Highlights: 42 studies meta-analysed, testing 20 … Continue reading

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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review

Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading

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Brain responses in CFS & TMD to autonomic challenges

Brain responses in CFS and TMD to autonomic challenges: an exploratory fMRI study, by QC Vuong, JR Allison, A Finkelmeyer, J Newton, J Durham in JDR Clinical & Translational Research, August 28, 2019   Research abstract: Introduction: Dysfunction of the … Continue reading

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