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Latest News
- Research: ME/CFS – diverse experiences, one recognisable illness
- Research: Marginal differences found between ME/CFS & LC
- Research: Impaired recovery from exertion in ME/CFS confirmed – treatments suggested
- Nutrition management in Severe ME – parents & carers respond
- Calls for wider research into PEM in ME/CFS, Long COVID & FM
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Author Archives: wames
Research: ME/CFS – diverse experiences, one recognisable illness
ME/CFS is hetergeneous This study found that although there is a wide variation in experience among the ME/CFS patient population, it does not differ significantly across different clinics. According to the authors “this suggests that expert clinicans are recognizing … Continue reading
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Research: Marginal differences found between ME/CFS & LC
ME/CFS & Long COVID patients have similar symptoms & quality of life This Australian study compared 61 patients with ME/CFS with 31 patients with Long Covid (aka Post COVID-19 condition- PCC) and found few differences in symptoms between the … Continue reading
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Research: Impaired recovery from exertion in ME/CFS confirmed – treatments suggested
Translating reduced oxygen consumption to impairment status to treatment considerations A study from US researchers has confirmed the results of previous small studies that found people with ME/CFS respond abnormally to exertion. 84 patients with ME/CFS and 71 sedentary … Continue reading
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Nutrition management in Severe ME – parents & carers respond
An open response from parents and carers of people with Severe ME A group of parents and carers of people with severe ME have welcomed Prof Edwards’ paper on the ‘Management of Nutritional Failure in People with Severe ME/CFS’, … Continue reading
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Calls for wider research into PEM in ME/CFS, Long COVID & FM
More research needed into the lack of recovery time in PEM The journal Science Norway looks at the key characteristic in ME/CFS of PEM, which can also be found in some people with Long COVID and Fibromyalgia. It highlights … Continue reading
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Congratulations Rob! Dad of the year!
Pride of Wales Dad of the Year 2024 Nation Radio holds Pride of Wales awards every year where people are nominated in 17 categories. The winner of Dad of the year for 2024 is Rob Messenger, carer of a … Continue reading
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Research review: ME/CFS 2024
ME/CFS: the biology of a neglected disease A group of South African and British researchers have reviewed the literature and described ME/CFS in terms of symptoms, severity and burden, diagnostic criteria, causes and triggers; followed by an overview of … Continue reading
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Treatment research: Immunoglobulin Therapy in ME/CFS
Successful subcutaneous Immunoglobulin Therapy in patients with ME/CFS Swedish researchers have found promising effects on symptoms in 17 people with infection associated ME/CFS from subcutaneous treatment (under the skin) with low-dose Immunoglobulin (IG) – Hizentra. Immunoglobulins are antibodies found … Continue reading
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Management of nutritional failure in severe ME
Management of nutritional failure in people with severe ME/CFS: Review of the case for supplementing NICE Guideline NG206 Prof Jonathan Edwards writes: “In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS have run into … Continue reading
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ME/CFS services in Wales – July 2024 update
ME/CFS service development The development of health services for people with ME/CFS in Wales continues, although only one Health Board has fully launched their service. Staff recruitment is a slow business and Health Boards continue to experience internal pressures … Continue reading
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