Author Archives: wames

The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology

Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology, by Evguenia Nepotchatykh, Wesam Elremaly, Iurie Caraus, Christian Godbout, Corinne Leveau, Lynda Chalder, Catherine Beaudin, Emi Kanamaru, Renata Kosovskaia, Shawn Lauzon, Yanick Maillet, Anita Franco, … Continue reading

Posted in News | Tagged , , , , , , , , , , , , , , , , , , , , | Leave a comment

Video: Activity & energy management – Pacing

Dialogues for a neglected illness: Activity and energy management – Pacing   The Dialogues for ME/CFS project (also known as Dialogues for a neglected illness) has produced a new video explaining pacing for health professionals. “Pacing is an individualized approach … Continue reading

Posted in News | Tagged , , , , , , , , , , | Leave a comment

NICE ME/CFS draft guideline: distinguishing ME/CFS from abuse or neglect

NICE ME/CFS draft guideline: distinguishing ME/CFS from abuse or neglect   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in … Continue reading

Posted in News | Tagged , , , , | Leave a comment

NICE ME/CFS draft guideline: how to provide information & support

NICE ME/CFS draft guideline: communicating information and providing support   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading

Posted in News | Tagged , , , | Leave a comment

Deep phenotyping of ME/CFS in Japanese population

Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population, by Toshimori Kitami, Sanae Fukuda, Tamotsu Kato, Kouzi Yamaguti, Yasuhito Nakatomi, Emi Yamano, Yosky Kataoka, Kei Mizuno, Yuuri Tsuboi, Yasushi Kogo, Harukazu Suzuki, Masayoshi Itoh, Masaki Suimye Morioka, Hideya Kawaji, … Continue reading

Posted in News | Tagged , | Leave a comment

NICE ME/CFS draft guideline recommends annual reviews

NICE ME/CFS draft guideline: annual reviews of management plans   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading

Posted in News | Tagged , , , | 1 Comment

Welsh Government consultation: Carers’ national plan for Wales

The Welsh Government (WG) is seeking views on a new national Plan for Carers. They want carers to be able to continue their own lives alongside their caring role. The WG want your views on: national priorities for unpaid carers … Continue reading

Posted in News | Tagged , , | Leave a comment

Accurate & objective determination of ME/CFS disease severity with a wearable sensor

Accurate and objective determination of myalgic encephalomyelitis/chronic fatigue syndrome disease severity with a wearable sensor, by Turner Palombo, Andrea Campos, Suzanne D Vernon, Shad Roundy in J Transl Med. 2020 Nov 10;18(1):423 [doi: 10.1186/s12967-020-02583-7]   Research abstract: Background: Approximately 2.5 million … Continue reading

Posted in News | Tagged , , , , , , , , , | Leave a comment

Raise funds for WAMES during Black Friday Week with Amazon Smile

Shopping during Black Friday Week? Use Amazon Smile Amazon Black Friday Week    20th – 30th November 2020 Fundraise for WAMES when you shop online with Amazon during Black Friday Week. Discover great deals and when you shop at smile.amazon.co.uk/ch/1144534-0 … Continue reading

Posted in News | Tagged , , , | Leave a comment

NICE ME/CFS draft guideline: management of symptoms & coexisting conditions

NICE ME/CFS draft guideline: management of symptoms & coexisting conditions   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Leave a comment