Category Archives: News

Modeling disability: softly making the invisible visible

Modeling disability: softly making the invisible visible, by Libby Evan (2020) Bachelor of Fine Arts Senior Papers 74   Research abstract: “I am not asking for pity. I am telling you about my disability.” – Eli Clare1 In the following … Continue reading

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Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort

Sleep problems in adolescents with CFS: A case-control study nested within a prospective clinical cohort, by Maria Elizabeth Loades, Katharine A Rimes, Trudie Chalder in Clinical Child Psychology and Psychiatry, May 22 2020 [doi.org/10.1177/1359104520918364]   Research abstract: Sleep problems have … Continue reading

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Review of the quality control checks performed by current genome-wide & targeted-genome association studies on ME/CFS

Review of the quality control checks performed by current genome-wide and targeted-genome association studies on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Nuno Sepulveda, Anna D Grabowska, Eliana M Lacerda, Luis C Nacul in Frontiers in Pediatrics. May 7, 2020 [doi: 10.3389/fped.2020.00293 … Continue reading

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Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence & EUROMENE research recommendations for epidemiology

Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence and EUROMENE research recommendations for epidemiology, by Fernando Estévez-López, Kathleen Mudie, Xia Wang-Steverding, Inger Johanne Bakken, Andrejs Ivanovs, Jesús Castro-Marrero, Luis Nacul, Jose Alegre, Paweł Zalewski, Joanna Słomko, … Continue reading

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Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae

Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading

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The feasibility & acceptability of an early intervention in primary care to prevent CFS in adults

The feasibility and acceptability of an early intervention in primary care to prevent chronic fatigue syndrome (CFS) in adults: randomised controlled trial, by Hazel O’Dowd, Lucy Beasant, Jenny Ingram, Alan Montgomery, Will Hollingworth, Daisy Gaunt, Simon M Collin, Sarah Horne, … Continue reading

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Patients’ experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome – a scoping mixed methods review

Patients’ experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome – a scoping mixed methods review, by Anne Marit Mengshoel, Ingrid Bergliot Helland, Mira Meeus, Jesus Castro-Marrero, Derek Pheby & Elin Bolle Strand in International Journal of Qualitative Studies … Continue reading

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A systematic review of metabolomic dysregulation in CFS/ME/SEID

A systematic review of metabolomic dysregulation in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis/Systemic Exertion Intolerance Disease (CFS/ME/SEID), by Teilah Kathryn Huth, Natalie Eaton-Fitch, Donald Staines & Sonya Marshall-Gradisnik in Journal of Translational Medicine vol 18, no. 198 (2020) Review abstract: Background: Chronic … Continue reading

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Difficulties of living with an illness not considered a “Disease”: focusing on the illness behavior of ME/CFS patients

Difficulties of living with an illness not considered a “Disease”: Focusing on the illness behavior of myalgic encephalomyelitis/chronic fatigue syndrome patients, by Natsuko Nojima in Departmental Bulletin Paper, Osaka Human Sciences Vol.6   Paper abstract: This paper focuses on the … Continue reading

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Save4Children – helping children with ME in psychiatric wards

Save4Children – helping children with ME in psychiatric wards   The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading

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