Category Archives: News

ACTivate your life well-being course begins Caerphilly 25 Nov 2019

Posted on November 20, 2019 by wames

ACTivate Your Life course in Caerphilly a four session course that aims to teach people about stress and suffering caused by emotional issues and offers a slightly different approach to more conventional methods of dealing with emotional and physical problems. … Continue reading →

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The longitudinal effects of seated isometric yoga on blood biomarkers, autonomic functions, & psychological parameters of patients with CFS

Posted on November 20, 2019 by wames

The longitudinal effects of seated isometric yoga on blood biomarkers, autonomic functions, and psychological parameters of patients with chronic fatigue syndrome: a pilot study, by Takakazu Oka, Tokusei Tanahashi, Battuvshin Lkhagvasuren, & Yu Yamada in BioPsychoSocial Medicine vol 13, no: … Continue reading →

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Carers’ Rights day Thurs 21 Nov 2019 – events across Wales

Posted on November 19, 2019 by wames

Carers Rights Day 2019 – Helping you find your way                When you’re caring, getting the right information at the right time can make all the difference. Events on Wednesday Newport    Wrexham Events … Continue reading →

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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME

Posted on November 18, 2019 by wames

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading →

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Survey of severe ME – help inform the NICE guidelines

Posted on November 14, 2019 by wames

Survey of severe ME Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) … Continue reading →

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A logistic regression analysis of risk factors in ME/CFS pathogenesis

Posted on November 14, 2019 by wames

A logistic regression analysis of risk factors in ME/CFS pathogenesis, by Eliana M Lacerda, Keith Geraghty, Caroline C Kingdon, Luigi Palla & Luis Nacul in BMC Neurology vol 19, no: 275 (2019)   Research abstract: Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome … Continue reading →

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Nurse staffing levels – what is your experience?

Posted on November 13, 2019 by wames

Nurse staffing levels in Wales The Royal College of Nursing Wales are currently  assessing the experience of patients / carers in respect of nurse staffing levels. This is linked to the Nurse Staffing Levels (Wales) Act which became law in … Continue reading →

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Differentiating post-polio syndrome from ME & CFS

Posted on November 13, 2019 by wames

Differentiating post-polio syndrome from myalgic encephalomyelitis and chronic fatigue syndrome, by Lauren Klebek, Madison Sunnquist & Leonard A Jason in Fatigue: Biomedicine, Health & Behavior.  Published online: 06 Nov 2019 [doi.org/10.1080/21641846.2019.1687117]   Research abstract: Background:  Overlapping and concomitant symptoms among … Continue reading →

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Video lecture by Dr Lucinda Bateman: Upright activity & exercise intolerance: critical concepts in the evaluation of chronic fatigue

Posted on November 12, 2019 by wames

Upright activity and exercise intolerance: critical concepts in the evaluation of chronic fatigue, by Dr Lucinda Bateman   Dr Bateman talks to doctors.  Duration 56 minutes. Topics covered: how she assesses and diagnoses patients with ME/CFS the questionnaires she gets … Continue reading →

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EPP self-management courses in North Wales 2020

Posted on November 12, 2019 by wames

Chronic Disease Self Management Programme The CDSMP is an EPP Cymru course to help people who live with a long term health condition to maintain and improve their quality of life through self-management. What does the course involve? Six weekly … Continue reading →

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