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Latest News
- PayPal Giving Fund – an easy way to donate to WAMES
- The changes in perceptions & treatments of ME – please help with a student survey
- EUROMENE epidemiological research – Dr Derek Pheby invites you to take part
- A relational analysis of an invisible illness: a meta-ethnography of people with CFS/ME & their support needs
- Take all post-viral illness seriously!
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Category Archives: News
PayPal Giving Fund – an easy way to donate to WAMES
PayPal Giving Fund WAMES has signed up to PayPal Giving Fund. Anyone can now donate to WAMES when shopping on eBay or paying by PayPal. Buyers and sellers can support us by adding a donation during checkout or donating … Continue reading
The changes in perceptions & treatments of ME – please help with a student survey
The changes in perceptions & treatments of ME. A WAMES volunteer is currently studying for the Welsh Baccalaureate. For her Individual Project she wants to find out how people’s perceptions of ME have changed over the last 20 years. … Continue reading
EUROMENE epidemiological research – Dr Derek Pheby invites you to take part
Dr Derek Pheby invites you to take part in EUROMENE research 19th October 2020 Dear fellow members of the ME community, I wonder if I could, please, request your assistance. I am working with European colleagues in the EUROMENE collaboration, … Continue reading
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Take all post-viral illness seriously!
Take all post-viral illness seriously! WAMES is working to alert the NHS and politicians in Wales to the need to take ALL post-viral illnesses seriously. We’d like to hear about any signs the NHS in Wales is waking up to … Continue reading
Cytokine profiling of extracellular vesicles isolated from plasma in ME/CFS
Cytokine profiling of extracellular vesicles isolated from plasma in myalgic encephalomyelitis/ chronic fatigue syndrome: a pilot study, by Ludovic Giloteaux, Adam O’Neal, Jesús Castro-Marrero, Susan M Levine, Maureen R Hanson in J Transl Med. 2020 Oct 12;18(1):387 [doi: 10.1186/s12967-020-02560-0] Research … Continue reading
Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients
Reductions in cerebral blood flow can be provoked by sitting in severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(4), 394 [doi.org/10.3390/healthcare8040394] Research abstract: Introduction: In … Continue reading
WAMES AGM news 2020
WAMES Annual General Meeting News, 2020 Our delayed AGM was held virtually on 26th September 2020. It was a lively meeting and we are excited about the future. People: Chair & Campaigns coordinator: Jan Russell Acting secretary: Tony Thompson … Continue reading
Short fatigue questionnaire: screening for severe fatigue
Short fatigue questionnaire: screening for severe fatigue, by Adriaan Penson, Sylvia van Deuren, Margreet Worm-Smeitink, Ewald Bronkhorst, Frank HJ van den Hoogen, Baziel GM van Engelen, Marlies Peters, Gijs Bleijenberg, Jan H Vercoulen, Nicole Blijlevens, Eline van Dulmen-den Broeder, Jacqueline … Continue reading
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Tagged Adriaan Penson, Baziel GM van Engelen, Checklist Individual Strength, chronic fatigue, CIS, Eline van Dulmen-den Broeder, Ewald Bronkhorst, Frank HJ van den Hoogen, Gijs Bleijenberg, Hans Knoop, Jacqueline Loonen, Jan H Vercoulen, Margreet Worm-Smeitink, Marlies Peters, Nicole Blijlevens, psychometrics, screening tools, SFQ, short fatigue questionnaire, Sylvia van Deuren
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Video lecture by Staci Stevens: Practical tips for energy management
Energy mangement in chronic illness: practical tips The Whittemore Peterson Institute in Nevada, USA, hosted a webinar in September for people with ME, CFS, Long Covid and FM. The recording is now available with special guest exercise physiologist Staci … Continue reading
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Tagged Annette Whittemore, energy management, PEM, Post-exertional malaise, Staci Stevens, Workwell Foundation
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