Category Archives: News

PayPal Giving Fund – an easy way to donate to WAMES

PayPal Giving Fund   WAMES has signed up to PayPal Giving Fund. Anyone can now donate to WAMES when shopping on eBay or paying by PayPal.  Buyers and sellers can support us by adding a donation during checkout or donating … Continue reading

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The changes in perceptions & treatments of ME – please help with a student survey

The changes in perceptions & treatments of ME.   A WAMES volunteer is currently studying for the Welsh Baccalaureate. For her Individual Project she wants to find out how people’s perceptions of ME have changed over the last 20 years. … Continue reading

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EUROMENE epidemiological research – Dr Derek Pheby invites you to take part

Dr Derek Pheby invites you to take part in EUROMENE research 19th October 2020 Dear fellow members of the ME community, I wonder if I could, please, request your assistance. I am working with European colleagues in the EUROMENE collaboration, … Continue reading

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A relational analysis of an invisible illness: a meta-ethnography of people with CFS/ME & their support needs

A relational analysis of an invisible illness: A meta-ethnography of people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and their support needs, by Karen Pilkington, Damien Ridge,  Chinonso N Igwesi-Chidobe, Carolyn Chew-Graham, Paul Little, Opeyemi Babatunde, Nadia Corp, Clare McDermott, Anna … Continue reading

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Take all post-viral illness seriously!

Take all post-viral illness seriously! WAMES is working to alert the NHS and politicians in Wales to the need to take ALL post-viral illnesses seriously. We’d like to hear about any signs the NHS in Wales is waking up to … Continue reading

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Cytokine profiling of extracellular vesicles isolated from plasma in ME/CFS

Cytokine profiling of extracellular vesicles isolated from plasma in myalgic encephalomyelitis/ chronic fatigue syndrome: a pilot study, by Ludovic Giloteaux, Adam O’Neal, Jesús Castro-Marrero, Susan M Levine, Maureen R Hanson in J Transl Med. 2020 Oct 12;18(1):387 [doi: 10.1186/s12967-020-02560-0]   Research … Continue reading

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Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients

Reductions in cerebral blood flow can be provoked by sitting in severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(4), 394 [doi.org/10.3390/healthcare8040394]   Research abstract: Introduction: In … Continue reading

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WAMES AGM news 2020

WAMES Annual General Meeting News, 2020   Our delayed AGM was held virtually on 26th September 2020.  It was a lively meeting and we are excited about the future. People: Chair & Campaigns coordinator: Jan Russell Acting secretary: Tony Thompson … Continue reading

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Short fatigue questionnaire: screening for severe fatigue

Short fatigue questionnaire: screening for severe fatigue, by Adriaan Penson, Sylvia van Deuren, Margreet Worm-Smeitink, Ewald Bronkhorst, Frank HJ van den Hoogen, Baziel GM van Engelen, Marlies Peters, Gijs Bleijenberg, Jan H Vercoulen, Nicole Blijlevens, Eline van Dulmen-den Broeder, Jacqueline … Continue reading

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Video lecture by Staci Stevens: Practical tips for energy management

Energy mangement in chronic illness: practical tips    The Whittemore Peterson Institute in Nevada, USA, hosted a webinar in September for people with ME, CFS, Long Covid and FM. The recording is now available  with special guest exercise physiologist Staci … Continue reading

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