Category Archives: News

Joint hypermobility & ME/CFS   Solve ME’s analysis of its You + ME Registry-based population (now Solve Together) sheds light on the complex interplay between joint hypermobility, ME/CFS, and Ehlers Danlos Syndrome. “Our results showed distinctive clinical characteristics in ME/CFS … Continue reading →

Physical Exertion in ME & the PEM/PESE effect, with Karen Leslie of Physios for ME   Rob Messenger shared his motivations for raising funds and awareness for ME by walking 500 miles over 100 days and climbing a total of … Continue reading →

WAMES helpline hours   The WAMES helpline is run by volunteers and will be closed over the long Easter weekend.  helpline@wames.org.uk  0290 2051 5061 The helpline will be closed from 5pm Thursday 26 March – 10am Tuesday 2 April 2024. … Continue reading →

The Inextricable Link Between ME and Long Covid: Solidarity with International Long Covid Awareness Day   As we observe International Long COVID Awareness Day on March 15th, WAMES and the World ME Alliance stands in solidarity with the millions worldwide … Continue reading →

Better care needed for young people with severe ME/CFS   A study of children and young people in the UK pre-pandemic found that investigation, referral and management of those with suspected severe ME/CFS do not always meet NICE recommendations. This … Continue reading →

Be part of the World ME Day 2024 campaign film As we approach World ME Day 2024, WAMES and the World ME Alliance (WMEA) invites you to be a part of a new short film that aims to shed light … Continue reading →

DecodeME results now due August 2025   The DecodeME team posted an update on 7 March 2024 DecodeME was due to be completed by August of this year Extraction of the DNA from samples has taken far longer than anticipated. … Continue reading →

ME/CFS NICE guideline based on a thorough review of the evidence   Criticisms by 50+ international researchers and clinicians of the ME/CFS NICE guideline were published in July 2023 and available on open access. In February 2024 a response from … Continue reading →

Rob asks Dr Nina Muirhead ‘What is ME?’   Rob Messenger shared his motivations for raising funds and awareness for ME by walking 500 miles over 100 days and climbing a total of 65,000 feet in 2 previous blog posts: … Continue reading →

Unravelling shared mechanisms: insights from recent ME/CFS research to illuminate long COVID pathologies   Researchers for Melbourne Australia reviewed research into both ME/CFS and Long COVID. “Research into both disorders is mutually beneficial as Long COVID can provide a unique … Continue reading →