Author Archives: wames
Give donations ‘In lieu of gifts’
Give donations ‘In lieu of gifts’ Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family to donate to us instead of giving … Continue reading
Decode ME – more participants needed – spread the word!
Decode ME – the world’s largest DNA study of ME/CFS Led by Dr Chris Ponting the study aims to uncover whether the disease is partly genetic and, if so, help pinpoint what causes it. They need tens of thousands … Continue reading
Research: Fighting Post-COVID and ME/CFS – development of curative therapies
Developing curative therapies for Post-COVID and ME/CFS Prof Carmen Scheibenbogen and German colleagues believe there is a need to explore treatments for ME/CFS and long COVID even though research hasn’t yet uncovered the full cause/s of the conditions and … Continue reading
ME/CFS service development in Wales: an update
ME/CFS in Wales Since the new NICE guideline for the diagnosis and management of ME/CFS was published in October 2021 WAMES has been asking the 7 Health Boards in Wales if they plan to implement the guideline and how … Continue reading
Research: Alcohol intolerance & ME/CFS
Alcohol intolerance and myalgic encephalomyelitis/chronic fatigue syndrome Using questionnaires and statistical analysis Jason & Machiuch found that people with ME/CFS are more likely to experience alcohol intolerance. Those with alcohol intolerance had more symptoms, including orthostatic intolerance. Alcohol intolerance … Continue reading
Video lecture: Using wearable technology with Long COVID & ME/CFS
Wearable technology for long COVID and ME/CFS with Harry Leeming This video lecture by Harry Leeming is one of the Massachusetts ME/CFS & FM Association‘s May Sunday Conversations series. A former engineer, Harry Leeming has worked at multiple early-stage … Continue reading
Research review: ME/CFS & Long COVID share similar symptoms & biological abnormalities
ME/CFS and Long COVID share similar symptoms and biological abnormalities “In this review, we first compare the symptoms of ME/CFS and Long COVID, noting the considerable similarities and the few differences. We then compare in extensive detail the underlying … Continue reading
Conference videos: International ME/CFS Conference 2023 (Berlin)
Understand, Diagnose, Treat – International ME/CFS Conference 2023 Leading international ME/CFS experts exchanged their views on the current state of research at the conference held at the Charité Fatigue Center, Berlin on 11-12 May 2023. Here are links to … Continue reading
500 miles for ME: Carer Rob’s fundraising challenge!
500 miles for ME – Rob’s challenge Rob says: On 8th June I will begin my challenge – to walk, 500 miles for ME over the course of 100 days to greet the sunrise at Paxton’s Tower, near Carmarthen. … Continue reading
