Author Archives: wames

National campaign aims for step change in disability justice   We all want a decent quality of life for ourselves and those we care about. Yet two million Disabled people are trapped in deep poverty, unable to afford to eat … Continue reading →

WAMES 2024 Bank Holiday helpline hours   The WAMES helpline is run by volunteers and will be closed for the Bank Holiday long weekend. helpline@wames.org.uk  0290 2051 5061 closes 5pm 23rd August reopens Tues 27th August     For emotional … Continue reading →

Severe ME Artists Project   140+ people contributed to the project organised by #MEAction. This 17 minute long video is a compilation of photos, drawings, writing and videos submitted from aound the world. #SevereME day View the full gallery

#SevereMEday 2024 WAMES calls for safe hospital care for severe ME in Wales   On #SevereMEday,  8 August 2024, WAMES is asking the NHS in Wales to ensure they can treat patients with ME, and particularly those with severe ME, … Continue reading →

Hospital Mistreatment of Severe ME Patients Globally   This #SevereMEday, 8th August 2024, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma, denial of evidence-based … Continue reading →

Cancer drug cyclophosphamide shows ME/CFS is treatable   Norwegian scientists have been testing 2 cancer drugs on ME patients for 6 years, following a surprise recovery from ME when being treated for cancer. Patients with ME/CFS enrolled in the two … Continue reading →

ME/CFS is hetergeneous    This study found that although there is a wide variation in experience among the ME/CFS patient population, it does not differ significantly across different clinics. According to the authors “this suggests that expert clinicans are recognizing … Continue reading →

ME/CFS & Long COVID patients have similar symptoms & quality of life   This Australian study compared 61 patients with ME/CFS with 31 patients with Long Covid (aka Post COVID-19 condition- PCC) and found few differences in symptoms between the … Continue reading →

Translating reduced oxygen consumption to impairment status to treatment considerations   A study from US researchers has confirmed the results of previous small studies that found people with ME/CFS respond abnormally to exertion. 84 patients with ME/CFS and 71 sedentary … Continue reading →

An open response from parents and carers of people with Severe ME   A group of parents and carers of people with severe ME have welcomed Prof Edwards’ paper on the ‘Management of Nutritional Failure in People with Severe ME/CFS’, … Continue reading →