Author Archives: wames
Energy Limiting Conditions: challenging disbelief & disregard (2)
Disbelief and Disregard in health and social care for people with Energy Limiting Conditions (ELC) Part 2 A research project into Energy Limiting Conditions (ELC) wanted to understand the problems people experience getting the support they need from health … Continue reading
#DecodeME DNA study – the final push!
#DecodeME – sign up by 15 November 2023 It is now one year since the launch of the world’s largest DNA study for ME/CFS and the #DecodeME team have announced the final date to sign up. MORE participants are … Continue reading
Energy Limiting Conditions: challenging disbelief & disregard (1)
Disbelief and Disregard in health and social care for people with Energy Limiting Conditions (ELC) Part 1 A research project into Energy Limiting Conditions (ELC) wanted to understand the problems people experience getting the support they need from health … Continue reading
Letter to those in a world untouched by ME, from Rachel
A letter to the world This is a piece of prose I wrote in the early years of living with ME. I remember feeling immensely frustrated when people in my life told me I looked well and was really … Continue reading
DePaul Symptom Questionnaire-Brief (DSQ-Brief): a brief screening scale for ME/CFS
A brief screening scale for ME/CFS Health professionals often use questionnaires to determine if a person has a particular illness. Prof Leonard Jason’s DePaul Symptom Questionnaire has 54 questions and takes much time and energy to get a full … Continue reading
Biomarker research: Developing a blood cell-based diagnostic test with Raman microscope
ME/CFS Biomarker is possible with Raman spectroscopy Researchers led by Prof Karl Morten in Oxford are confident they have found a suitable way of distinguishing between healthy people, other diseases and ME/CFS patients with high accuracy (91%), and can further … Continue reading
Research: WASF3 – a protein that disrupts cellular energy production in ME/CFS
WASF3 – disrupting cellular energy production in ME/CFS Malfunctioning mitochondria have long been thought to play a role in ME/CFS but working out exactly what is wrong is taking time. You may hear mitochondria called “the powerhouse of the … Continue reading
#DecodeME research: Being female, older and ill for longer increase the chance of greater severity
Initial findings from the DecodeME questionnaire data published The Study team report: We’ve analysed questionnaire answers from the first 17,000 DecodeME participants and the results have been published by NIHR Open Research – read the paper HERE. We are … Continue reading
The viral origin of ME/CFS – Prof Hanson’s view
The viral origin of ME/CFS Experienced US researcher Prof Maureen Hanson explores the evidence for the viral connection to ME/CFS and finds no proof that multiple infections lead to ME/CFS. She sees enteroviruses as the most likely culprit and … Continue reading
Research: Measuring everyday ME/CFS physical abnormalities at home
Home-based testing protocol to measure physiological responses to everyday activities in ME Physios for ME and an exercise specialist have trialled a safe method of measuring the effect of everyday activities on people with ME/CFS. CPET exercise testing in … Continue reading
