Category Archives: News
Severe ME Day: New minicourse on severe ME
Severe ME clinical training for health professionals For Severe ME Awareness Day, Learna / StudyPRN are providing all healthcare professionals with free educational content via their ‘Question of the Day’ Campaign to challenge and improve clinical knowledge, understanding and … Continue reading
Ffion: Struck down by ME & vax, uplifted by poetry & card-making
Struck down by ME and vaccinations – Uplifted by poetry and card-making A lover of the outdoors, and a literature and languages graduate, Ffion’s ME deteriorated after a COVID vaccination. Her life was already restricted, though she had found … Continue reading
A life in a day? A poem by Ffion for Severe ME Day
A LIFE IN A DAY …? 8th August 2023: Severe ME Day Rise, Take pain-med. Lie down to recover … Try to read EMail? Lie down to recover … Eat light breakfast, Recline to recover … … Continue reading
Severe ME: caring for bedbound with ME
Caring for people with ME/CFS who are bedbound Emerge Australia has put together a guide to help you care for a loved one who is severely impacted by ME/CFS and has become bedbound People who are mostly or entirely … Continue reading
#EndMalnutrionInME guidelines
Severe ME day – #EndMalnutrionInME guidelines ME needs to be recognised as a risk disease for malnutrition For Severe ME Day 2023 the 25% Group, which represents people with severe ME, say that currently, allied health care professionals are … Continue reading
Video: Very severe ME/CFS
Video: Very severe ME/CFS, from Broken Battery Very Severe ME/CFS is a debilitating condition causing profound suffering and life-threatening symptoms. Patients are in bed all day and dependent on care. They need help with personal hygiene and eating, and … Continue reading
Standing strong-Global ME community is unified in support NICE ME/CFS guideline
Standing strong – Global ME community is unified in firm support for the NICE 2021 ME/CFS guideline WAMES has joined 56 leaders in the ME community from across the globe in writing a rapid response to the July 2023 … Continue reading
Severe ME Day 2023 – #EndmalnutritionInME
#EndMalnutritionInME – Severe ME day August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding light on the often … Continue reading
