Category Archives: News

WAMES AGM 2023 – signs of hope for the future!

WAMES AGM 2023: hope for the future   Our annual business meeting on 17th June 2023 celebrated the first signs of hope that services for people with ME/CFS in Wales might be on the horizon. Many times over the years … Continue reading

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More than one condition at a time – ME/CFS and comorbidities

What links conditions comorbid with ME/CFS?   Comorbidity… describes the existence of more than one disease or condition within your body at the same time. Comorbidities are usually long-term, or chronic. They may or may not interact with each other.  … Continue reading

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Give donations ‘In lieu of gifts’

Give donations ‘In lieu of gifts’    Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family to donate to us instead of giving … Continue reading

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Decode ME – more participants needed – spread the word!

Decode ME – the world’s largest  DNA study of ME/CFS   Led by Dr Chris Ponting the study aims to uncover whether the disease is partly genetic and, if so, help pinpoint what causes it. They need tens of thousands … Continue reading

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Research: Fighting Post-COVID and ME/CFS – development of curative therapies

Developing curative therapies for Post-COVID and ME/CFS   Prof Carmen Scheibenbogen and German colleagues believe there is a need to explore treatments for ME/CFS and long COVID even though research hasn’t yet uncovered the full cause/s of the conditions and … Continue reading

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ME/CFS service development in Wales: an update

ME/CFS in Wales   Since the new NICE guideline for the diagnosis and management of ME/CFS was published in October 2021 WAMES has been asking the 7 Health Boards in Wales if they plan to implement the guideline and how … Continue reading

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Research: Alcohol intolerance & ME/CFS

Alcohol intolerance and myalgic encephalomyelitis/chronic fatigue syndrome   Using questionnaires and statistical analysis Jason & Machiuch found that people with ME/CFS are more likely to experience alcohol intolerance. Those with alcohol intolerance had more symptoms, including orthostatic intolerance. Alcohol intolerance … Continue reading

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Videos: INIM ME/CFS conference 2023

Institute for Neuro-Immune Medicine Conference 2023   On May 19th in Florida USA the INIM conference, led by Dr Nancy Klimas explored the many parallels formed around COVID-19 and ME/CFS. Viral Reactivation, Mast Cell Activation, Systemic and Vascular Inflammation, and … Continue reading

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Video lecture: Using wearable technology with Long COVID & ME/CFS

Wearable technology for long COVID and ME/CFS with Harry Leeming   This video lecture by Harry Leeming is one of the Massachusetts ME/CFS & FM Association‘s May Sunday Conversations series. A former engineer, Harry Leeming has worked at multiple early-stage … Continue reading

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Research review: ME/CFS & Long COVID share similar symptoms & biological abnormalities

ME/CFS and Long COVID share similar symptoms and biological abnormalities   “In this review, we first compare the symptoms of ME/CFS and Long COVID, noting the considerable similarities and the few differences. We then compare in extensive detail the underlying … Continue reading

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