Category Archives: News

Rob’s #500miles4ME awareness raising with Dr Nina Muirhead

Rob asks Dr Nina Muirhead ‘What is ME?’   Rob Messenger shared his motivations for raising funds and awareness for ME by walking 500 miles over 100 days and climbing a total of 65,000 feet in 2 previous blog posts: … Continue reading

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Review: ME/CFS research illuminates long COVID

Unravelling shared mechanisms: insights from recent ME/CFS research to illuminate long COVID pathologies   Researchers for Melbourne Australia reviewed research into both ME/CFS and Long COVID. “Research into both disorders is mutually beneficial as Long COVID can provide a unique … Continue reading

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Rob’s #500miles4ME awareness raising reflections

#500miles4ME: taking awareness raising to a different level!   Rob summed up his motivation and fundraising activities for his #500miles4ME fundraising walk in a previous blog. He now reflects on what made him take the decision to do more to … Continue reading

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Research: Brain, immune & metabolic abnormalities linked in ME/CFS

Brain abnormality, not muscle fatigue, found in ME/CFS   An in-depth study of 17 people with virally triggered ME/CFS has uncovered an imbalance in brain activity triggered by abnormalities in the immune system. They also found distinct differences between men … Continue reading

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Become a #GlobalVoiceForME

Together, we are battling a global health crisis With your support, we will be a #GlobalVoiceForME   This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health … Continue reading

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Rob’s #500miles4ME fundraising success – reflections

£6004 raised for ME charities!   Rob Messenger completed his 500 mile fundraising walk for charity on 5 November 2023, and by mid January 2024  he had raised a grand total of £6004 (including GiftAid) for 3 charities: WAMES  £1530 … Continue reading

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Biomarker research: Similar immune system dysfunction in Long COVID & ME/CFS

Potential biomarker and treatment for imune dysfunction   A potential biomarker has been identified by US researchers that indicates immune system dysfunction among people living with long COVID and ME/CFS. This involves dysfunctional CD8 T-cells. Immune deficiency and health was … Continue reading

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Ear seeds as treatment for ME/CFS – what people say

Dragon’s Den accused of  being a scandal and a disgrace   A Dragon’s Den programme on BBC TV on 17 January 2023 featured a business selling acupuncture ear seeds that Giselle Boxer said helped her on her journey of recovery … Continue reading

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GET should not be recommended for patients with PEM

Graded exercise therapy should not be recommended for patients with post-exertional malaise   Major researchers from the US and Europe – including Todd Davenport, Carmen Scheibenbogen and David Putrino – have replied to Fedorowski et al’s Review, which supports the … Continue reading

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Research shows that ME/CFS is a biological illness

Why do some people still think ME/CFS is psychological in nature?   A recent article by a team of researchers in Germany and the USA – including Manuel Thoma, Leonard Jason and Carmen Scheibenbogen – provides a clear summary of … Continue reading

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