Delivery Plan on Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome for England

The DHSC has published the cross-Government Delivery Plan on ME/CFS for England that was begun in May 2022 by the former Secretary of State for Health and Social Care (Rt. Hon. Sajid Javid).

Three working groups were established in June 2022 to support the development of the plan by focusing on three themes:

• Research
• Attitudes & Education
• Living with ME/CFS

Through these groups, Department of Health and Social Care officials engaged with a range of stakeholders, including people with lived experience, charities, professional bodies and representatives from specialist services, to consider available evidence and to develop policy proposals and content.

Consultation

The Interim Delivery Plan has now been published, alongside a focussed 8-week consultation.

The Department of Health and Social Care invites views from people with lived experience of ME/CFS, and their families and carers, as well as the wider public, health, education and care professionals, researchers and organisations representing those living with ME/CFS.

They want to know how far it addresses the issues most important to you and help them to identify where they need to go further.

They aim to publish the Final ME/CFS Delivery Plan for England before the end of the year.

Live outside England?

Responses from people who live or work in Wales, Scotland or Northern Ireland will be forwarded to the relevant devolved governments to inform their future policy developments in this area.

“The Welsh Government… are keen to review the views of their residents on the interim delivery plan so that they can consider the implications for local policy.”

Find out more

Government announces new plan to help those impacted by ME/CFS

Interim delivery plan outlines 21 actions to improve understanding, research and care for those living with ME/CFS

Read: My full reality: the Interim Delivery Plan on ME/CFS, and survey 

The survey will take between 20 to 30 minutes to complete. Respondents can leave and come back to complete the survey in stages by clicking on the link to the survey using the same browser.

Listen to: My full reality: the Interim Delivery Plan

The consultation will close on 4 October 2023.

See also:

TES: New guidance on supporting pupils with ME and CFS

MERUK: My full reality: the interim delivery plan on ME/CFS – Our response