ME: Challenge the myths, champion the facts!

On World ME day 12 May 2025 we invite you to join us in debunking 6 of the myths about Myalgic Encephalopmyelitis (ME/CFS)

Myth 1: ME is just about feeling tired

Fact: The defining symptom of ME is Post-Exertional Malaise (PEM)

– an extreme worsening of symptoms after even minor physical or mental exertion. While there is no cure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent PEM.

This can trigger a “crash” lasting for days or longer, making even basic activities difficult or impossible. Attempting to push through can significantly worsen symptoms and may lead to long-term deterioration.

For those with severe ME, even minimal exertion—such as sitting up, light conversation, or sensory stimuli like sound and light—can be intolerable, leaving them extremely disabled and dependent on full-time care.

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