Llais Cymru invites us to tell them about the health & social care we want

Llais Cymru is a Welsh Government body with the remit to promote patients’ interests to NHS Wales and social care in Wales.

“We’re here to make sure your views and experiences are used by decision-makers to plan and deliver better health and social care services.  And when things go wrong our independent and trained complaints advocates can support you to make complaints.”

Their new initiative invites us all to have ‘a national conversation about creating clearer, fairer and more person-centred services.’ They want to build ‘a fairer and more balanced relationship between people and the Health and Social Care services they use.’

“Too few people know their rights, what they can reasonably expect from services, or how they can play their own part in staying well and that is why Llais is leading The Health and Social Care We Want: a national conversation about creating clearer, fairer and more person-centred services.”

Their Aim: to make it easier for people to:

• Know and understand their rights
• Know what to expect from health and social care services
• Know the part they have to play in their own health and care

“At the same time, Llais want to support services to better meet people’s needs by listening to real experiences and using what they hear to make things better. It’s about building trust, reducing confusion and creating services that work for everyone.”

The more people and organisations who are speaking up for people with ME in Wales the better, so WAMES encourages people living with ME, and their carers, to let Llais Cymru know what YOU want from the NHS and Social services!

You can get involved in a number of ways, including:

• Completing the We Want survey
• Book a 1:1 conversation with them
• Host your own conversation with your community or group with the help of their self-facilitation pack
• Attend a Llais event
• Contact them directly: wewant@llaiscymru.org

WAMES, and the other organisations in the ME Voices Wales project will be responding, but they want to hear from individual services users as well.

The conversation runs until 30 September 2025, after which Llais aim to publish a report with key findings, recommendations, and a framework for change.