WAMES has a vision for ME/CFS healthcare in Wales
Since 2000 WAMES has been shining a spotlight on the services needed by people with ME/CFS and asking for access to appropriate healthcare.
We’ve not been asking for anything special, just parity with other medical conditions – respectful treatment from informed professionals. Here is an excerpt from our Vision statement:
An all Wales strategy
- to improve training for diagnosis and management
- to develop a healthcare pathway
- shaped by NICE for all ages and all severities
- to consistently record diagnoses to give accurate statistics
- co-produced to ensure it relates to patients’ needs
- to safeguard patients when accessing non-ME services
- recognising the role of the whole family, not just the person living with the condition
Services that are
- for all ages and severities
- shaped by the NICE 2021 guideline
- developed through true co-production with patients, carers and third sector
- truly suitable for people living with PEM/PESE the key characteristic that makes ME/CFS different to most other conditions
Read the full Vision English Welsh
Find out more about services in Wales: A patchwork of progess, regional variation and gaps
