Author Archives: wames
#EndMalnutrionInME guidelines
Severe ME day – #EndMalnutrionInME guidelines ME needs to be recognised as a risk disease for malnutrition For Severe ME Day 2023 the 25% Group, which represents people with severe ME, say that currently, allied health care professionals are … Continue reading
Video: Very severe ME/CFS
Video: Very severe ME/CFS, from Broken Battery Very Severe ME/CFS is a debilitating condition causing profound suffering and life-threatening symptoms. Patients are in bed all day and dependent on care. They need help with personal hygiene and eating, and … Continue reading
Standing strong-Global ME community is unified in support NICE ME/CFS guideline
Standing strong – Global ME community is unified in firm support for the NICE 2021 ME/CFS guideline WAMES has joined 56 leaders in the ME community from across the globe in writing a rapid response to the July 2023 … Continue reading
Severe ME Day 2023 – #EndmalnutritionInME
#EndMalnutritionInME – Severe ME day August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding light on the often … Continue reading
Research: Impaired balance & physical capacity in ME/CFS & Long COVID
Impaired balance and physical capacity found in both ME/CFS and Long COVID US researchers found that people with long COVID have reduced physical capacity and postural sway similar to people with ME/CFS, despite having the post-viral illness for an … Continue reading
Introducing WAMES volunteer: Caitlin
Hi! I’m Caitlin and I volunteer with WAMES I joined the WAMES team in late 2022. I’m currently progressing into my 3rd year as a Psychology student at university. For one of my previous modules, I had to find … Continue reading
Research review: Immune dysfunction in susceptible people leads to the post-viral fatigue syndromes ME/CFS & Long COVID
Immune dysfunction, ME/CFS and long COVID This review of research by the New Zealand research team led by Prof Warren Tate looks at immunological factors that may explain why some patients never recover from viral infections. It argues that … Continue reading
Poem: This road, by Rachel Hazelwood
This Road: (I have walked this road before…..) By Rachel Hazlewood Somewhere faintly whispering in the shadows of my mind Through an erstwhile firmly shuttered door A distant thought – a memory I’d hoped I’d never find I remember: … Continue reading
