Author Archives: wames
Patients diagnosed with ME/CFS also fit SEID criteria
Research abstract: Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remains undiagnosed in up to 91% of patients. Recently, the United States-based Institute of Medicine (IOM) developed new diagnostic criteria, naming it systemic exertion intolerance disease (SEID). Purpose: We examined how subjects fit SEID criteria … Continue reading
Cellular immune responses in post-giardiasis CFS
Research abstract: BACKGROUND: The role of pathogen specific cellular immune responses against the eliciting pathogen in development of post-infectious chronic fatigue syndrome (PI-CFS) is not known and such studies are difficult to perform. The aim of this study was to … Continue reading
WAMES AGM 1 April 2017 – your contribution invited
The WAMES AGM will take place on 1st April 2017. This will be a short business meeting to report on the activities of the past year and plan the priorities for the coming year. Attracting funding and volunteers is our … Continue reading
First Minister’s Question time addresses employment barriers for long term fluctuating conditions
National Assembly for Wales Recording of proceedings, 7 March 2017: 13:55 Mark Isherwood 3. Sut y mae Llywodraeth Cymru yn helpu i leihau’r rhwystrau i gyflogaeth ar gyfer pobl sydd â chyflyrau iechyd hirdymor cyfnewidiol? OAQ(5)0481(FM) 3. How is the … Continue reading
Selection bias & disease misclassification undermine the validity of ME/CFS studies
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome has been a controversial diagnosis, resulting in tensions between patients and professionals providing them with care. A major constraint limiting progress has been the lack of a ‘gold standard’ for diagnosis; with a number … Continue reading
Anxiety – autonomic nervous system in ME/CFS to blame?
Health rising blog post, by Cort Johnson, Dec 10, 2016: The Anxiety Question in Chronic Fatigue Syndrome and Fibromyalgia: Is the Autonomic Nervous System to Blame? Anxiety type symptoms are common in chronic fatigue syndrome (ME/CFS), fibromyalgia, Gulf War Ilness (GWI), … Continue reading
The Clinical & Scientific Basis of ME/CFS is now free to download
A research classic from 1992 is now available to download for free (725 pages – a heavy tome) The Clinical and Scientific Basis of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Edited by Byron Hyde, M.D. – Nightingale Research Foundation, Ottawa, … Continue reading
Collection of writings about the PACE trial
Investigator bias and the PACE trial, by Steven Lubet in Journal of Health Psychology[Published online: 7 March 2017] Abstract: The PACE investigators reject Geraghty’s suggestion that the cognitive behavior therapy/graded exercise therapy trial could have been better left to researchers … Continue reading
Is health anxiety aka hypochondria common in people with CFS?
Hypochondria (health anxiety) is excessive worrying about your health, to the point where it causes great distress and affects your everyday life. Some people with health anxiety have a medical condition, which they worry about excessively. Others have medically unexplained symptoms, … Continue reading