Author Archives: wames

BBC asks about using a wheelchair on public transport

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ME/CFS studies link autonomic nervous system problems to brain

Health rising blog post, by Cort Johnson, 3 Feb 2017: Chronic Fatigue Syndrome Studies Link Autonomic Nervous System Problems to Brain Dr. Barnden of the National Centre for NeuroImmnology and Emerging Diseases (NCNED) in Griffith University, Australia has been doing … Continue reading

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Important factors to consider when treating children with CFS/ME

Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading

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30% of people with ME/CFS in Japan are severely affected

Article abstract: In 2014, the Japanese Ministry for Health, Labour, and Welfare commissioned a national patient survey of ME/CFS patients in  Japan. Japan ME Association president Mieko Shinohara graciously summarizes the survey results here for us, which revealed that 30% of ME/CFS patients … Continue reading

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Time to Change Wales – mental health campaign to end stigma & discrimination

Time to Change Wales is the first national campaign to end the stigma and discrimination faced by people with mental health problems. National Time to Talk Day – 2nd February 2017 – It’s a day that brings the nation together … Continue reading

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The interface between CFS & depression

Research abstract: The chronic fatigue syndrome (CFS) remains a contentious and controversial presentation despite decades of systematic research into the presentation from a variety of specialties within the medical and associated disciplines. Variously championed as an aetiology of immunological, neurological, neurophysiological, psychiatric and psychological origin, … Continue reading

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Treatment and management of CFS/ME: all roads lead to Rome

Review abstract: This comprehensive review explores the current evidence on benefits and harms of therapeutic interventions in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) and makes recommendations. CFS/ME is a complex, multi-system, chronic medical condition whose pathophysiology remains unknown. No established diagnostic … Continue reading

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Team Shareth raises over £420 for WAMES

Sharon Price writes: Yesterday evening Gareth and I completed our 5 mile swimathon for WAMES! Woop woop! 322 lengths of 25 metres; so two and a half miles each. A long way! We are aching but feeling very proud of ourselves. … Continue reading

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Giardia-specific cellular immune responses in post-giardiasis CFS

Research abstract: Background: The role of pathogen specific cellular immune responses against the eliciting pathogen in development of post-infectious chronic fatigue syndrome (PI-CFS) is not known and such studies are difficult to perform. The aim of this study was to … Continue reading

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Naviaux & Gordon respond to criticisms of their metabolomics research

Reply to Roerink et al.: Metabolomics of chronic fatigue syndrome, by Robert K. Naviaux and Eric Gordon in PNAS 2017 114 (6) E911-E912; [published ahead of print January 26, 2017] We thank Roerink et al. (1) for their comments. We respond to … Continue reading

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