Author Archives: wames
NHS Wales ME services development plan
The ME-CFS & FM Implementation Group, chaired by Prof Jonathan Richards (Cwm Taf Locality Clinical Director), has met twice during the first half of 2015. This Group gives Health Boards (HBs) a chance to share experiences and encourage each other … Continue reading
POTS
Research abstract: Postural tachycardia syndrome (POTS) is a form of chronic orthostatic intolerance for which the hallmark physiological trait is an excessive increase in heart rate with assumption of upright posture. The orthostatic tachycardia occurs in the absence of orthostatic … Continue reading
First Class student overcomes CFS to graduate in Bangor
Article from Bangor University website: A Psychology student who credits Bangor University for ‘taking a chance’ on her has graduated with a First Class Honours degree. Ashleigh Johnstone from Douglas on the Isle of Man has battled Chronic Fatigue Syndrome … Continue reading
Muscle weakness in arms & trunk in ME/CFS
ME Research UK comments on research into muscle weakness, July 21 2015: One of the key difficulties that ME/CFS patients face is standing (orthostasis), particularly standing still. For them, simply being upright can trigger a cluster of symptoms, such as … Continue reading
Mindfulness and ME/CFS
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is associated with physical, cognitive and emotional challenges, and much research suggests that mindfulness-based interventions (MBIs) can be helpful for these difficulties. It is reasonable to assume that living with ME/CFS influences how people … Continue reading
Dr Leonard Jason’s reflections on SEID
Article abstract: The Institute of Medicine (IOM) in the US has recently proposed that the term Systemic Exertion Intolerance Disease (SEID) replace Chronic Fatigue Syndrome (CFS). In addition, the IOM proposed a new case definition for SEID, which includes substantial … Continue reading
Accurate diagnosis of ME and CFS based on objective test methods for characteristic symptoms
Article abstract: Although myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are considered to be synonymous, the definitional criteria for ME and CFS define two distinct, partially overlapping, clinical entities. ME, whether defined by the original criteria or by the … Continue reading
Challenge & defence of name SEID and IOM’s definition
Fink and Schröder challenge the validity of the IoM’s new name and definition of ME/CFS: Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome To the Editor: The Institute of Medicine (IOM) proposed a new name (systemic exertion intolerance disease) and diagnostic criteria for myalgic encephalomyelitis/chronic … Continue reading
Meanings of ME
Book abstract: Chronic fatigue syndrome (CFS or ME) is a problematic diagnosis, and much of the existing writing on the topic is dominated by questions of biology, psychology and causation. The focus on personal, interpersonal and public meanings in Meanings of ME signals … Continue reading
Gluten sensitivity isn’t a fad
Gluten sensitivity isn’t a fad—it’s a real problem, say scientists, Tuesday, July 07, 2015 from What doctors don’t tell you Not eating wheat is all the rage, and some sceptics regard it as a fashionable fad—but scientists have discovered that … Continue reading
