Author Archives: wames

Hospital Mistreatment of Severe ME Patients Globally   This #SevereMEday, 8th August 2024, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma, denial of evidence-based … Continue reading →

Cancer drug cyclophosphamide shows ME/CFS is treatable   Norwegian scientists have been testing 2 cancer drugs on ME patients for 6 years, following a surprise recovery from ME when being treated for cancer. Patients with ME/CFS enrolled in the two … Continue reading →

ME/CFS is hetergeneous    This study found that although there is a wide variation in experience among the ME/CFS patient population, it does not differ significantly across different clinics. According to the authors “this suggests that expert clinicans are recognizing … Continue reading →

ME/CFS & Long COVID patients have similar symptoms & quality of life   This Australian study compared 61 patients with ME/CFS with 31 patients with Long Covid (aka Post COVID-19 condition- PCC) and found few differences in symptoms between the … Continue reading →

Translating reduced oxygen consumption to impairment status to treatment considerations   A study from US researchers has confirmed the results of previous small studies that found people with ME/CFS respond abnormally to exertion. 84 patients with ME/CFS and 71 sedentary … Continue reading →

An open response from parents and carers of people with Severe ME   A group of parents and carers of people with severe ME have welcomed Prof Edwards’ paper on the ‘Management of Nutritional Failure in People with Severe ME/CFS’, … Continue reading →

More research needed into the lack of recovery time in PEM   The journal Science Norway looks at the key characteristic in ME/CFS of PEM, which can also be found in some people with Long COVID and Fibromyalgia. It highlights … Continue reading →

Pride of Wales Dad of the Year 2024   Nation Radio holds Pride of Wales awards every year where people are nominated in 17 categories. The winner of  Dad of the year for 2024 is Rob Messenger, carer of a … Continue reading →

ME/CFS: the biology of a neglected disease   A group of South African and British researchers have reviewed the literature and described ME/CFS in terms of symptoms, severity and burden, diagnostic criteria, causes and triggers; followed by an overview of … Continue reading →

Successful subcutaneous Immunoglobulin Therapy in patients with ME/CFS   Swedish researchers have found promising effects on symptoms in 17 people with infection associated ME/CFS from subcutaneous treatment (under the skin) with low-dose Immunoglobulin (IG) – Hizentra. Immunoglobulins are antibodies found … Continue reading →