Author Archives: wames

Caring About Equality   During Carers Week 2025, 9-15 June, WAMES is joining the call for a fairer society for all our unpaid carers. The Caring about Equality report  highlights the inequalities facing unpaid carers in the UK today and … Continue reading →

No Volunteers – no WAMES! WAMES is entirely volunteer run. But what does that mean? What do volunteers do for WAMES? For the past 25 years volunteers have enabled WAMES to speak out on behalf of people affected by ME. … Continue reading →

Disabled People’s Rights – have your say!   The Welsh Government has launched a consultation on its Draft Disabled People’s Rights plan, setting out “a positive ambition for advancing the rights and opportunities of all disabled people across Wales over … Continue reading →

Tell ME Voices Wales what matters to you The ME Voices Wales project was launched in May 2025 by WAMES and FTWW with 2 virtual events. After hearing about past advocacy efforts in Wales, participants were asked to select the … Continue reading →

WAMES Annual General Meeting 2025   WAMES will be holding our annual business meeting via Teams on Saturday 7 June at 11.30 am. This is the opportunity for members to elect officers, oversee the finances and identify priorities for the … Continue reading →

Marjorie Crispin – fondly remembered   We were very sorry to hear of the death of Marjorie Crispin on 9th May 2025. We remember with gratitude the many years when she and her husband John organised and guided the Mid … Continue reading →

Clinical Care Guide: Managing ME/CFS, Long COVID & Infection-Associated Chronic Conditions (IACCs)   This clinical care guide has been developed by the OMF-supported Medical Education Resource Center (MERC) at Bateman Horne Center, Utah, USA. It aims to offer “a practical … Continue reading →

ME: Challenge the myths, champion the facts!   On World ME day 12 May 2025 we invite you to join us in debunking 6 of the myths about Myalgic Encephalopmyelitis (ME/CFS) Myth 6: Long COVID is entirely different to ME … Continue reading →

ME: Heriwch y mythau, hyrwyddwch y ffeithiau!   Ar Ddydd ME byd 12 Mai 2025, rydym yn eich gwahodd i ymuno â ni i ddadlau 6 o’r chwedlau am ME (ME/CFS). Myth 6: Mae COVID Hir yn hollol wahanol i … Continue reading →

ME: Challenge the myths, champion the facts!   On World ME day 12 May 2025 we invite you to join us in debunking 6 of the myths about Myalgic Encephalopmyelitis (ME/CFS) Myth 5: Doctors cannot help people with ME Fact: … Continue reading →