Author Archives: wames

Management of nutritional failure in severe ME

Management of nutritional failure in people with severe ME/CFS: Review of the case for supplementing NICE Guideline NG206   Prof  Jonathan Edwards writes: “In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS have run into … Continue reading

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ME/CFS services in Wales – July 2024 update

ME/CFS service development    The development of health services for people with ME/CFS in Wales continues, although only one Health Board has fully launched their service.  Staff recruitment is a slow business and Health Boards continue to experience internal pressures … Continue reading

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FUNCAP: a new way to assess functional capacity in ME/CFS

Functional Capacity in ME/CFS: an assessment questionnaire   Researchers from Norway and Norwich have collaborated to improve the ability to  assess funcional capacity in ME/CFS, something they believe can inform all areas of life for affected people. “The absence of … Continue reading

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Medical students learn the importance of medical education, kindness, compassion & belief in ME/CFS

Scottish medical students’ thoughts on learning about ME/CFS   In early 2024 medical students at Scottish medical schools were invited to take part in an essay competition, 500 words on the topic of ‘What is your most important learning point … Continue reading

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Unpaid carers write to the future Prime Minister

An open letter from unpaid carers …to the future UK Prime Minister  Carers UK has organised an open letter on behalf of unpaid carers across the UK. They will deliver the final letter to 10 Downing Street following the General … Continue reading

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Carmarthenshire ME Support Group meetings 2024

Carms ME Support Group   The group invites people with ME, family & carers to join them in Coleshill Social Centre, Llanelli for their bi-monthly meetings. in the Coleshill Social Centre, Coleshill Terrace, Llanelli SA15 3BT.  The entrance is  round … Continue reading

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Wellness with WNO: Could breathing & singing coaching help people with ME?

Wellness with Welsh National Opera   Could breathing & singing coaching help people with ME?   WAMES has met with a representative from the Welsh National Orchestra to find out about their Wellness with WNO initiative.  They already offer a … Continue reading

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When art eases pain – Diamond Art

When art eases pain   PF from south Wales has found better pain management through ‘Diamond Art.’ I want to tell you about the new way I’ve found to help me with my pain management. This is through the process … Continue reading

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World ME day: Share the ME factsheet

Build a better understanding of ME – share the WMEA ME factsheet   As WAMES joins countries round the world on #WorldMEday in 2024 calling for a #GlobalVoiceForME, we are fortunate to be able to share a fact sheet that … Continue reading

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World ME Day: ME is a global crisis: Be a #GlobalVoiceForME

Together, we are battling a global health crisis   With your support, we will be a #GlobalVoiceForME This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME as a neurological condition, highlighting the urgency of … Continue reading

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