Author Archives: wames
Management of nutritional failure in severe ME
Management of nutritional failure in people with severe ME/CFS: Review of the case for supplementing NICE Guideline NG206 Prof Jonathan Edwards writes: “In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS have run into … Continue reading
ME/CFS services in Wales – July 2024 update
ME/CFS service development The development of health services for people with ME/CFS in Wales continues, although only one Health Board has fully launched their service. Staff recruitment is a slow business and Health Boards continue to experience internal pressures … Continue reading
FUNCAP: a new way to assess functional capacity in ME/CFS
Functional Capacity in ME/CFS: an assessment questionnaire Researchers from Norway and Norwich have collaborated to improve the ability to assess funcional capacity in ME/CFS, something they believe can inform all areas of life for affected people. “The absence of … Continue reading
Medical students learn the importance of medical education, kindness, compassion & belief in ME/CFS
Scottish medical students’ thoughts on learning about ME/CFS In early 2024 medical students at Scottish medical schools were invited to take part in an essay competition, 500 words on the topic of ‘What is your most important learning point … Continue reading
Unpaid carers write to the future Prime Minister
An open letter from unpaid carers …to the future UK Prime Minister Carers UK has organised an open letter on behalf of unpaid carers across the UK. They will deliver the final letter to 10 Downing Street following the General … Continue reading
Carmarthenshire ME Support Group meetings 2024
Carms ME Support Group The group invites people with ME, family & carers to join them in Coleshill Social Centre, Llanelli for their bi-monthly meetings. in the Coleshill Social Centre, Coleshill Terrace, Llanelli SA15 3BT. The entrance is round … Continue reading
Wellness with WNO: Could breathing & singing coaching help people with ME?
Wellness with Welsh National Opera Could breathing & singing coaching help people with ME? WAMES has met with a representative from the Welsh National Orchestra to find out about their Wellness with WNO initiative. They already offer a … Continue reading
When art eases pain – Diamond Art
When art eases pain PF from south Wales has found better pain management through ‘Diamond Art.’ I want to tell you about the new way I’ve found to help me with my pain management. This is through the process … Continue reading
World ME day: Share the ME factsheet
Build a better understanding of ME – share the WMEA ME factsheet As WAMES joins countries round the world on #WorldMEday in 2024 calling for a #GlobalVoiceForME, we are fortunate to be able to share a fact sheet that … Continue reading
World ME Day: ME is a global crisis: Be a #GlobalVoiceForME
Together, we are battling a global health crisis With your support, we will be a #GlobalVoiceForME This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME as a neurological condition, highlighting the urgency of … Continue reading