Author Archives: wames

ME/CFS Delivery plan for Wales proposal   WAMES welcomed the DHSC’s Interim delivery plan on ME/CFS for England when it was published in September. We were also pleased that the Welsh Government is ‘keen to review the views of their … Continue reading →

Long COVID & ME/CFS have similarly impaired vascular function   Researchers from Scotland found similar problems with the lining of the blood vessels (endothelium) in both people with long COVID and ME/CFS, in spite of people with ME/CFS being ill … Continue reading →

32 organisations call for future pandemic preparedness to address infection-associated chronic conditions    The World ME Alliance says future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the … Continue reading →

Machine learning analysis of SF-36 Health questionnaire could be as diagnostic tool for ME/CFS   Spanish researchers looked for an alternative to using an expensive and invasive exercise test (CPET) as a diagnostic biomarker in patients with ME/CFS. They found … Continue reading →

ME/CFS and pregnancy: a systematic review   When reviewing studies of pregnancy in women living with ME/CFS, researchers from Newcastle University found the impact of pregnancy on ME/CFS severity varied within and between the small number of relevant studies. The … Continue reading →

Primary fatigue service, Cwm Taf MUHB   Cwm Taf Morgannwg University Health Board (CTMUHB) is the first health board in Wales to launch a service for post viral illness, which includes both ME/CFS and Long COVID. Who is the service … Continue reading →

Language can hurt   “The way language is used can frustrate or upset people who have ME/CFS.” This is one of the discoveries made by the Working Group who have developed the draft English ME/CFS Delivery Plan: My full reality: … Continue reading →

500 miles for ME – Rob raises £1,00 for WAMES   Rob began his challenge in June –  to walk 500 miles for ME over the course of 100 days, to greet the sunrise at Paxton’s Tower, near Carmarthen.   … Continue reading →

MEA Count ME In survey of  health and social care for ME/CFS and Long COVID    7,303 people in the UK completed the ME Association’s survey: 85% (6,208 people) had a diagnosis of ME/CFS 10% (730) had a diagnosis of … Continue reading →

Disbelief and Disregard in health and social care for people with Energy Limiting Conditions (ELC) Part 2   A research project into Energy Limiting Conditions (ELC) wanted to understand the problems people experience getting the support they need from health … Continue reading →