Author Archives: wames

More research needed into the lack of recovery time in PEM   The journal Science Norway looks at the key characteristic in ME/CFS of PEM, which can also be found in some people with Long COVID and Fibromyalgia. It highlights … Continue reading →

Pride of Wales Dad of the Year 2024   Nation Radio holds Pride of Wales awards every year where people are nominated in 17 categories. The winner of  Dad of the year for 2024 is Rob Messenger, carer of a … Continue reading →

ME/CFS: the biology of a neglected disease   A group of South African and British researchers have reviewed the literature and described ME/CFS in terms of symptoms, severity and burden, diagnostic criteria, causes and triggers; followed by an overview of … Continue reading →

Successful subcutaneous Immunoglobulin Therapy in patients with ME/CFS   Swedish researchers have found promising effects on symptoms in 17 people with infection associated ME/CFS from subcutaneous treatment (under the skin) with low-dose Immunoglobulin (IG) – Hizentra. Immunoglobulins are antibodies found … Continue reading →

Management of nutritional failure in people with severe ME/CFS: Review of the case for supplementing NICE Guideline NG206   Prof  Jonathan Edwards writes: “In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS have run into … Continue reading →

ME/CFS service development    The development of health services for people with ME/CFS in Wales continues, although only one Health Board has fully launched their service.  Staff recruitment is a slow business and Health Boards continue to experience internal pressures … Continue reading →

Functional Capacity in ME/CFS: an assessment questionnaire   Researchers from Norway and Norwich have collaborated to improve the ability to  assess funcional capacity in ME/CFS, something they believe can inform all areas of life for affected people. “The absence of … Continue reading →

Scottish medical students’ thoughts on learning about ME/CFS   In early 2024 medical students at Scottish medical schools were invited to take part in an essay competition, 500 words on the topic of ‘What is your most important learning point … Continue reading →

An open letter from unpaid carers …to the future UK Prime Minister  Carers UK has organised an open letter on behalf of unpaid carers across the UK. They will deliver the final letter to 10 Downing Street following the General … Continue reading →

Carms ME Support Group   The group invites people with ME, family & carers to join them in Coleshill Social Centre, Llanelli for their bi-monthly meetings. in the Coleshill Social Centre, Coleshill Terrace, Llanelli SA15 3BT.  The entrance is  round … Continue reading →