Author Archives: wames
DecodeME completion date extended to Aug 2025
DecodeME results now due August 2025 The DecodeME team posted an update on 7 March 2024 DecodeME was due to be completed by August of this year Extraction of the DNA from samples has taken far longer than anticipated. … Continue reading
NICE replies to criticism of ME/CFS guideline
ME/CFS NICE guideline based on a thorough review of the evidence Criticisms by 50+ international researchers and clinicians of the ME/CFS NICE guideline were published in July 2023 and available on open access. In February 2024 a response from … Continue reading
Rob’s #500miles4ME awareness raising with Dr Nina Muirhead
Rob asks Dr Nina Muirhead ‘What is ME?’ Rob Messenger shared his motivations for raising funds and awareness for ME by walking 500 miles over 100 days and climbing a total of 65,000 feet in 2 previous blog posts: … Continue reading
Review: ME/CFS research illuminates long COVID
Unravelling shared mechanisms: insights from recent ME/CFS research to illuminate long COVID pathologies Researchers for Melbourne Australia reviewed research into both ME/CFS and Long COVID. “Research into both disorders is mutually beneficial as Long COVID can provide a unique … Continue reading
Rob’s #500miles4ME awareness raising reflections
#500miles4ME: taking awareness raising to a different level! Rob summed up his motivation and fundraising activities for his #500miles4ME fundraising walk in a previous blog. He now reflects on what made him take the decision to do more to … Continue reading
Research: Brain, immune & metabolic abnormalities linked in ME/CFS
Brain abnormality, not muscle fatigue, found in ME/CFS An in-depth study of 17 people with virally triggered ME/CFS has uncovered an imbalance in brain activity triggered by abnormalities in the immune system. They also found distinct differences between men … Continue reading
Become a #GlobalVoiceForME
Together, we are battling a global health crisis With your support, we will be a #GlobalVoiceForME This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health … Continue reading
Rob’s #500miles4ME fundraising success – reflections
£6004 raised for ME charities! Rob Messenger completed his 500 mile fundraising walk for charity on 5 November 2023, and by mid January 2024 he had raised a grand total of £6004 (including GiftAid) for 3 charities: WAMES £1530 … Continue reading
Biomarker research: Similar immune system dysfunction in Long COVID & ME/CFS
Potential biomarker and treatment for imune dysfunction A potential biomarker has been identified by US researchers that indicates immune system dysfunction among people living with long COVID and ME/CFS. This involves dysfunctional CD8 T-cells. Immune deficiency and health was … Continue reading
Ear seeds as treatment for ME/CFS – what people say
Dragon’s Den accused of being a scandal and a disgrace A Dragon’s Den programme on BBC TV on 17 January 2023 featured a business selling acupuncture ear seeds that Giselle Boxer said helped her on her journey of recovery … Continue reading
