Author Archives: wames

Wales & the English ME/CFS Delivery Plan

‘My full reality: the interim delivery plan on ME/CFS’ and the implications for Wales   On 9th August 2023 the Department of Health & Social Care published a ‘set of actions to improve the experiences and outcomes of people in … Continue reading

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ME/CFS Delivery Plan for England published

Delivery Plan on Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome for England   The DHSC has published the cross-Government Delivery Plan on ME/CFS for England that was begun in May 2022 by the former Secretary of State for Health and Social Care … Continue reading

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Severe ME Day: New minicourse on severe ME

Severe ME clinical training for health professionals   For Severe ME Awareness Day, Learna / StudyPRN are providing all healthcare professionals with free educational content via their ‘Question of the Day’ Campaign to challenge and improve clinical knowledge, understanding and … Continue reading

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Ffion: Struck down by ME & vax, uplifted by poetry & card-making

Struck down by ME and vaccinations – Uplifted by poetry and card-making   A lover of the outdoors, and a literature and languages graduate, Ffion’s ME deteriorated after a COVID vaccination. Her life was already restricted, though she had found … Continue reading

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A life in a day? A poem by Ffion for Severe ME Day

A LIFE IN A DAY …? 8th August 2023: Severe ME Day         Rise, Take pain-med. Lie down to recover … Try to read EMail? Lie down to recover … Eat light breakfast, Recline to recover … … Continue reading

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Severe ME: caring for bedbound with ME

Caring for people with ME/CFS who are bedbound   Emerge Australia has put together a guide to help you care for a loved one who is severely impacted by ME/CFS and has become bedbound People who are mostly or entirely … Continue reading

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#EndMalnutrionInME guidelines

Severe ME day – #EndMalnutrionInME guidelines   ME needs to be recognised as a risk disease for malnutrition For Severe ME Day 2023 the 25% Group, which represents people with severe ME, say that currently, allied health care professionals are … Continue reading

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Video: Very severe ME/CFS

Video: Very severe ME/CFS, from Broken Battery   Very Severe ME/CFS is a debilitating condition causing profound suffering and life-threatening symptoms. Patients are in bed all day and dependent on care. They need help with personal hygiene and eating, and … Continue reading

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Standing strong-Global ME community is unified in support NICE ME/CFS guideline

Standing strong – Global ME community is unified in firm support for the NICE 2021 ME/CFS guideline   WAMES has joined 56 leaders in the ME community from across the globe in writing a rapid response to the July 2023 … Continue reading

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Severe ME gallery 2023

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