#World ME day, 12 May – Take action!


Together, we are battling a global health crisis – help us let the WHO know

A part of the World ME Alliance we are joining with nations all over the world, asking the people responsible for working with the World Health Organization to become a #GlobalVoiceForME.

In the UK this is Ms Nicky Shipton-Yates
WHO Policy Manager
International Directorate
Department of Health and Social Care

At the World ME Alliance, we estimate there are over 500,000 people with ME in UK.

Join this global effort to send a message to the WHO!

Take these simple steps to send an email to Nicky Shipton-Yates and copy in the World ME Alliance, so we can follow-up on the connections you help us to make!

  1. Copy and paste the below template into a new email
  2. Add your name to the first paragraph, and your contact details at the end
  3. Edit the template to include a little about yourself, and how ME has impacted your life, as a person with ME or an ally.
  4. Remember to be polite.
  5. Copy and paste the recipients email address into the To: field, and remember to include us  at globalvoiceforme@worldmealliance.org as well!
  6. Press send!

Share this article with other people in Wales and the rest of the UK to get more people involved!

Copy and paste your template letter to:

dhsc.publicenquiries@dhsc.gov.uk     globalvoiceforme@worldmealliance.org

Urgent Call for Action: Become a global voice for ME

Dear Ms Nicky Shipton-Yates,

I am [Insert Your Name], a citizen and advocate representing the 500,000 plus people with Myalgic Encephalomyelitis (ME) in the United Kingdom.

Before the COVID-19 pandemic, there were between 17 and 30 million people living with ME worldwide. Now, the World ME Alliance now estimates there are at least 55 million globally, with millions of new cases triggered by COVID-19. Research shows half of those with long COVID meet the criteria for an ME diagnosis.

ME has huge economic implications: most people with ME are unable to work, 25% are housebound or bedbound, and there are substantial costs associated with their care.

As we approach World ME Day 2024 on May 12th, dedicated to raising awareness about ME and its impact, I urge you to join me in becoming a voice for those affected by this debilitating condition.

ME was officially recognized as a neurological disease by the WHO 55 years ago, but still faces alarming challenges. Its severe and incurable nature significantly impacts patients’ quality of life, usually forcing them to stop working and taking part in society. Lack of recognition makes their struggles worse.

The World ME Alliance estimates that the numbers of people living with ME in the United Kingdom have more than doubled since the beginning of the COVID-19 pandemic.

I’m reaching out to ask for your help championing the cause of ME in United Kingdom. It’s crucial we take an active role in supporting those living with this devastating disease.

Please contact the World ME Alliance’s Head of Advocacy and Communications, via globalvoiceforme@worldmealliance.org, to arrange a Zoom meeting and explore how United Kingdom can become a #GlobalVoiceForME.

Your support is pivotal for improving the lives of those affected by ME.

Thank you for your time and consideration on this critical issue.

Yours sincerely,
[Your Full Name] [Your Contact Information]

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