Category Archives: News

Orthostatic intolerance in CFS

Orthostatic intolerance in chronic fatigue syndrome, by Richard Garner and James N Baraniuk in Journal of Translational Medicine 2019 17:185 [Published: 3 June 2019] https://doi.org/10.1186/s12967-019-1935-y   Research abstract: Background: Orthostatic intolerance (OI) is a significant problem for those with chronic … Continue reading

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Clinical symptoms & markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection

Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection: an exploratory cross-sectional study, by Miriam Skjerven Kristiansen, Julie Stabursvik, Elise Catriona O’Leary, Maria Pedersen, Tarjei Tørre Asprusten, Truls Leegaard, Liv Toril Osnes, Trygve Tjade, … Continue reading

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Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS

Abnormal blood lactate accumulation during repeated exercise testing in myalgic encephalomyelitis/chronic fatigue syndrome, by Katarina Lien, Bjørn Johansen, Marit B Veierød, Annicke S Haslestad, Siv K Bøhn, Morten N Melsom, Kristin R Kardel, Per O Iversen in Physiological reports vol … Continue reading

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PEM: It’s time to retire the term

PEM: It’s time to retire the term, by Pete Hanauer in The Solve ME/CFS Chronicle, Spring 2018   FOR MANY YEARS, people who suffered the pain and disruption to their lives caused by ME/CFS also suffered the indignity of being … Continue reading

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Patient perspectives on self-management technologies for CFS

Patient perspectives on self-management technologies for Chronic Fatigue Syndrome, by Tabby Davies, Simon Jones, Ryan Kelly in CHI Conference on Human Factors in Computing Systems Proceedings (CHI 2019), May 4–9, 2019, Glasgow, Scotland UK, 13 pages. https://doi.org/10.1145/3290605. 3300452   Research abstract: … Continue reading

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Carers Wales Summer Roadshows: Llandrindod Wells, Cardiff, Colwyn Bay, June 2019

Carers Wales Summer Roadshows Are you an unpaid family carer?    A free event for you! 9.30 to 2.30 Media Resource Centre, Llandrindod Wells, 18 June Norwegian Church, Cardiff, 20 June Porth Eirias Colwyn Bay, 21 June Information about Carers Rights … Continue reading

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Healthcare services for people with ME & CFS in Wales – your views needed

Healthcare services for people with ME & CFS in Wales a clinical research study by a third-year medical student at Cardiff University Aim of the project:   The aim of this project is to better understand healthcare services for people … Continue reading

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Carers Week 2019 – getting carers connected!

Carers Week 2019 – getting carers connected! This week is Carers Week – 10th – 16th June 2019   Caring can be a hugely rewarding experience but carers often find it challenging to take care of their own wellbeing whilst … Continue reading

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Intro to mindfulness course begins in Swansea, 11 June 2019

Introduction to mindfulness course, Swansea. Location: YMCA 1 The Kingsway Swansea SA1 5JQ    Room: Theatre Date: Tuesday 11th, 18th and 25th 2019 Time: 2-4 pm What is Mindfulness? Paying more attention to the present moment – to your own thoughts … Continue reading

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Stress management course begins in Neath 10 June 2019

The Stress Control course The Stress Control course helps people to understand how stress and associated problems such as low mood, anxiety, panic and sleep affect them. The aim of the course is to help turn you into your own therapist; … Continue reading

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