Category Archives: News

Symptom frequency & development of a generic functional disorder symptom scale suitable for use in studies of patients with IBS, FMS, or CFS

Symptom frequency and development of a generic functional disorder symptom scale suitable for use in studies of patients with irritable bowel syndrome, fibromyalgia syndrome or chronic fatigue syndrome, by Michael E Hyland, Alison M Bacon, Joseph W Lanario, Anthony F … Continue reading

Posted in News | Tagged , , , , , , , | Leave a comment

With severe ME, everything is cut off from possibility

by Greg Crowhurst, Stonebird

Posted in News | Tagged , , | Leave a comment

Severe ME: complex, unpredictable symptoms

Stonebird – the lived experience of severe ME

Posted in News | Tagged , | Leave a comment

The frail teenager set to spend all of her summer holidays in her bedroom

Wales online blog post: The frail teenager set to spend all of her summer holidays in her bedroom, by Mark Smith, 6 August 2019 Lola Brandrick, 13, from Swansea, is crippled by pain and is constantly exhausted While all her … Continue reading

Posted in News | Tagged , , , , , | Leave a comment

Severe ME day- 8 August 2019

Severe ME Day – 8th of August 2019 A day to remember everyone who is suffering or who has ever suffered from severe and very severe Myalgic Encephalomyelitis. The 25% Group offers support for severe ME. They have published a … Continue reading

Posted in News | Tagged , , | Leave a comment

ME Support group meets Llanelli 10 Aug 2019

Carmarthenshire ME Group invites people to join them on Sat 1oth August 2019 at 2pm in the Coleshill Social Centre, Coleshill Terrace, Llanelli SA15 3BT More info: John James 01267233793 [pm only]   Ring first to check the meeting is going … Continue reading

Posted in News | Tagged , , | Comments Off on ME Support group meets Llanelli 10 Aug 2019

Metabolic features of Gulf War illness [similarities & differences to CFS]

Metabolic features of Gulf War illness, by Robert K Naviaux, Jane C Naviaux, Kefeng Li, Lin Wang, Jonathan M Monk, A Taylor Bright, Hayley J Koslik, Janis B Ritchie, Beatrice A Golomb in PLoS ONE 14(7): e0219531 [Published: July 26, 2019] … Continue reading

Posted in News | Tagged , , , , , , , , , , , , , | Comments Off on Metabolic features of Gulf War illness [similarities & differences to CFS]

CFS – an illness without disease?

CFS – an illness without disease? In a recent paper psychologist Prof Michael Sharpe and sociologist Monica Greco discuss CFS as an ‘illness without disease’ in comparison to cancer, a known disease, and argued that, while illness-focused treatments like CBT … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on CFS – an illness without disease?

Stress management course Ebbw Vale 6 Aug 2019

The 6-week course in Stress Control will help you to understand stress, how it can affect you and how to control it. Each week you will learn new Stress Control skills and will learn how to fit these into your … Continue reading

Posted in News | Tagged , , , | Comments Off on Stress management course Ebbw Vale 6 Aug 2019

MAGENTA trial comment: ‘Targeting activity levels in ME/CFS

Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Comments Off on MAGENTA trial comment: ‘Targeting activity levels in ME/CFS