Category Archives: News

NICE ME/CFS guideline is robust & globally supported

WAMES joins global support for ME/CFS NICE guideline   On 11th July, a new study was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts … Continue reading

Posted in News | 1 Comment

ME the illness: “Mourning the life we’ve lost”  

ME the illness: “Mourning the life we’ve lost”   The Messenger family have translated the article about them Cyflwr ME: ‘Galaru am fywyd ry’n wedi’i golli‘ posted on Cymru Fyw.   “The harmful effect of ME on patients and on … Continue reading

Posted in News | Comments Off on ME the illness: “Mourning the life we’ve lost”  

Research review: urinary biomarkers in ME/CFS

Urinary biomarkers for ME/CFS?   Although urine would be an easy sample to collect from patients this study found that research into its use as a biomarker for ME/CFS was inconsistent. Studies were limited in size, susceptible to variables, used … Continue reading

Posted in News | Comments Off on Research review: urinary biomarkers in ME/CFS

Invest in ME Research conference report & videos

Watch IiME Conference talks now available   The 15th Invest in ME Research International ME Conference 2023 – IIMEC15 – took place on 2nd June 2023  near Cambridge, UK. The theme was “An Update on Research into ME – Post-Pandemic – … Continue reading

Posted in News | Comments Off on Invest in ME Research conference report & videos

Research: Brain fog in ME/CFS & long COVID

Cognitive impairment (Brain fog) in ME & LC   US researchers led by Drs Suzanne Vernon and Lucinda Bateman investigated cognitive problems in people with ME acquired both recently and over 10 years previously. We believe that the closer to … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Comments Off on Research: Brain fog in ME/CFS & long COVID

Guide to involving people with ME & energy limiting conditions

Involving people with ME and other energy limiting conditions: a guide   A new publication from the The World ME Alliance aims to promote inclusivity and empower individuals with energy limiting conditions. Involving people with lived experience of disability is … Continue reading

Posted in News | Tagged , , | Comments Off on Guide to involving people with ME & energy limiting conditions

Biomarker research: a unique circular RNA expression pattern in ME/CFS

  Australian researchers examined circRNAs  in people with ME/CFS before and after 2 exercise tests. CircRNA plays a regulating role in gene expression, and an essential role in the process of biological development…, as well as a critical role in … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Biomarker research: a unique circular RNA expression pattern in ME/CFS

WAMES AGM 2023 – signs of hope for the future!

WAMES AGM 2023: hope for the future   Our annual business meeting on 17th June 2023 celebrated the first signs of hope that services for people with ME/CFS in Wales might be on the horizon. Many times over the years … Continue reading

Posted in News | Comments Off on WAMES AGM 2023 – signs of hope for the future!

More than one condition at a time – ME/CFS and comorbidities

What links conditions comorbid with ME/CFS?   Comorbidity… describes the existence of more than one disease or condition within your body at the same time. Comorbidities are usually long-term, or chronic. They may or may not interact with each other.  … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on More than one condition at a time – ME/CFS and comorbidities

Give donations ‘In lieu of gifts’

Give donations ‘In lieu of gifts’ – to aid our #newWAMESwebsite Fundraising Challenge   Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family … Continue reading

Posted in News | Comments Off on Give donations ‘In lieu of gifts’