Category Archives: News
Is health anxiety aka hypochondria common in people with CFS?
Hypochondria (health anxiety) is excessive worrying about your health, to the point where it causes great distress and affects your everyday life. Some people with health anxiety have a medical condition, which they worry about excessively. Others have medically unexplained symptoms, … Continue reading
Cytokine inhibition in CFS
Research abstract: Background: Interleukin-1 (IL-1), an important proinflammatory cytokine, is suspected to play a role in chronic fatigue syndrome (CFS). Objective: To evaluate the effect of subcutaneous anakinra versus placebo on fatigue severity in female patients with CFS. Design: Randomized, … Continue reading
Standard research criteria would aid ME/CFS research
Research abstract: Background: The Institute of Medicine (IOM) recently developed clinical criteria for what had been known as chronic fatigue syndrome. Given the broad nature of the clinical IOM criteria, there is a need for a research definition that would … Continue reading
Two year follow-up of sleep diaries & polysomnography in CFS
Research abstract: Background: Chronic fatigue syndrome (CFS) is a prevalent and debilitating symptom complex of unknown aetiology. Up to 96.8% of people with CFS report unrefreshing sleep and many describe, in qualitative interviews, changes in sleep over the course of their illness. Purpose: … Continue reading
Inquiry into loneliness & isolation closing date 10 March 2017
The Welsh Government Health, Social Care and Sport Committee has launched an inquiry into loneliness and isolation. The closing date for responses is 10 March 2017 The Committee would welcome your views on any or all of the following points: the evidence for the … Continue reading
Age Cymru Wales forecasts loneliness & isolation epidemic
WAMES is continually being made aware of the isolation people with ME can feel. Unfortunately years of limited contact with friends and family due to poor health can mean that loneliness becomes an even greater issue as people age and friends and family … Continue reading
‘Betwixt & between’ liminality in recovery stories from people with ME or CFS
Research abstract: This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both … Continue reading
Dyfed High Sheriff Awards for support groups
The Carmarthenshire ME Support Group and Cwtch-Pembrokeshire support group received awards from the High Sheriff of Dyfed for service to the community at a reception in Carmarthen on 15 February 2017. Western Telegraph, 21 Feb 2017: CWTCH Pembrokeshire’s outstanding contribution … Continue reading
Caution needed when using online prescription services
BBC news article, by Dr Faye Kirkland, 3 March 2017: Buying medications online ‘can put health at risk’ People should be wary of buying medications on the internet after an investigation found “widespread failings” at some online providers, the Care … Continue reading
Increased levels of intramuscular cytokines in patients with jaw muscle pain
Prof Julia Newton highlighted in 2015 that a high proportion of people with ME also have TMD Research abstract: BACKGROUND: The aim of this study was to investigate cytokine levels in the masseter muscle, their response to experimental tooth-clenching and … Continue reading
