Category Archives: News
ME/CFS Primer for clinical practitioners
The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) has published a Primer for clinical practitioners. It is available as a PDF file and is free to download, though donations are invited. A 42 page spiral bound print booklet can be … Continue reading
Pioneer for ME, David Lewis 1939- 2012
Paediatrician David Lewis has died of pancreatic cancer at the age of 73. As a consultant paediatrician at Bronglais hospital, Aberystwyth, he was one of very few doctors in Wales to take ME seriously in the 1980s and 1990s. His … Continue reading
Michelle Penny – Living with ME for the last 17 years
For the last 17 years, Michelle Penny has been crippled by chronic fatigue and pain, which has left her virtually bed-bound. She tells Rachel Mainwaring what it’s like living with ME at Wales online. Excerpts: “I relapsed in October and … Continue reading
Dr Betty Dowsett 1920-2012 ME champion
It is with deep regret that we announce the death of Dr Betty Dowsett on June 14 in a nursing home in Cambridge at the age of 91. In 2001, at the age of 80, and already retired for many … Continue reading
The proof El shaved her head for WAMES!
‘ME is debilitating, misunderstood, confusing and unpredictable’
Pippa Bennet describes her experience of ME on the We are Cardiff blog: 12th May is International ME awareness day. You know ME, it’s the lazy people’s disease? Well, it’s estimated that over 28 million people now suffer from it … Continue reading
Raise awareness with WAMES!
Join us in raising awareness of ME: Wear blue on the 12th (either a blue ribbon or blue clothes) and be ready to tell people why. Join our Awareness event on Facebook (FB) and invite others – tell us about … Continue reading
Eleanor is ‘hair-raising’ for WAMES on 12th May
El Jones is bravely going to shave her head on ME Awareness day, 12th May, in aid of WAMES and invites you to sponsor her. Eleanor has had ME for 4 years and lives in south Wales. Her efforts combined … Continue reading
Health Minister talks about ME
On 25th April a number of AMs asked questions about services for ME, highlighting the difficulties patients have in finding healthcare from knowledgeable professionals in Wales. The Health Minister Lesley Griffiths replied: There is a lot of misunderstanding and more … Continue reading
MRC funded research projects
Summaries of the current research projects funded by the MRC aimed at ‘Understanding the Mechanisms of CFS/ME’ have been added to the the section ‘MRC-funded research projects’ of the Medical Research Council’s CFS/ME page.
