Category Archives: News
Interview with Ronald W Davis about his search for cure for sick CFS son
BBC interview with Ronald W Davis, Professor of Biochemistry and Genetics at Stanford University USA: Scientist dad searches for cure for sick son Whitney Dafoe was a healthy, well-travelled photographer until he contracted an illness that has been identified as … Continue reading
ME: symptoms & biomarkers
Review abstract: Myalgic Encephalomyelitis (ME) continues to cause significant morbidity worldwide with an estimated one million cases in the United States. Hurdles to establishing consensus to achieve accurate evaluation of patients with ME continue, fueled by poor agreement about case definitions, slow progress … Continue reading
What matters to children with CFS/ME? devising a PROM
Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading
Mark Tami MP took the ME/CFS chilli challenge
On twitter, Oct 6, Mark Tami AM said: No video unfortunately but I took part in the chilliMEchallenge @MECFS_Challenge. Now I’m nominating @AlynDeesideAM More info about the chilli challenge
HPV vaccine can lead to disabling pain and fatigue
Research abstract: Isolated cases and small series have described the development of complex regional pain syndrome, postural orthostatic tachycardia, and fibromyalgia after human papillomavirus (HPV) vaccination. These illnesses are difficult to diagnose and have overlapping clinical features. Small fiber neuropathy … Continue reading
Immune exhaustion & new gut findings in ME/CFS
Tea-Time at Simmaron I: Mady Hornig on the “Peterson Subsets”, Immune Exhaustion and New Gut Findings In ME/CFS by Cort Johnson at simmaronresearch.com, September 28, 2015 The Simmaron Research Foundation is out to redefine ME/CFS scientifically. In an recent event called … Continue reading
Humoral immune dysfunction common in CFS
Research abstract: Chronic fatigue syndrome (CFS) is a severe disease characterized by various symptoms of immune dysfunction. CFS onset is typically with an infection and many patients suffer from frequently recurrent viral or bacterial infections. Immunoglobulin and mannose binding lectin … Continue reading
TMD in CFS is indicator of greater autonomic dysfunction
Research abstract: Background: Chronic fatigue syndrome (CFS) is heterogeneous in nature, yet no clear subclassifications currently exist. There is evidence of dysautonomia in almost 90% of patients and CFS is often co-morbid with conditions associated with autonomic nervous system (ANS) dysfunction, such as … Continue reading
Can Mindfulness reduce stress in long term physical conditions?
Review abstract: OBJECTIVE: To identify whether mindfulness-based stress reduction is effective in improving physical health outcomes for long-term physical conditions. METHOD: A systematic review of the literature (retrieved from MEDLINE, PubMed and PsycINFO). RESULTS: Fifteen studies were included in the … Continue reading
Dysfunctional pain – challenges for drug discovery
Research abstract: ‘Dysfunctional pain’, a type of chronic pain, is associated with a broad range of clinical disorders, including fibromyalgia, irritable bowel syndrome and interstitial cystitis. It is emerging as a serious issue due to the negative impact of inexplicable … Continue reading
