Category Archives: News
Fecal microbiota transplantation – a treatment in CFS?
Research abstract: Intestinal dysbiosis is now known to be a complication in a myriad of diseases. Fecal microbiota transplantation (FMT), as a microbiota-target therapy, is arguably very effective for curing Clostridium difficile infection and has good outcomes in other intestinal … Continue reading
CFS v SEID as diagnostic criteria
Research abstract: Background: The Institute of Medicine has recommended a change in the name and criteria for chronic fatigue syndrome (CFS), renaming the illness systemic exertion intolerance disease (SEID). The new SEID case definition requires substantial reductions or impairments in … Continue reading
Autophagy in bacterial infections
Research abstract: Autophagy is a highly conserved catabolic process for the degradation of cytosolic components including damaged organelles, protein aggregates, and intracellular bacteria through a lysosome-dependent pathway. Autophagy can be induced in response to stress conditions. Furthermore, autophagy has been … Continue reading
ME/CFS: ethical and unethical uses of NLP
In this article by Nancy Blake, she argues that it is unethical and harmful to use Neuro Linguistic Programming (NLP) to persuade a person with ME to deny the biomedical realities of ME/CFS, to tell them that all will be well … Continue reading
Time loaded standing in women with CFS
Research abstract Patients with chronic fatigue syndrome (CFS), like patients with osteoporosis, have similar difficulties in standing and sitting. The aim of the study was to compare combined trunk and arm endurance among women with CFS (n=72), women with osteoporosis … Continue reading
Alternatively diagnosed Lyme disease & CFS
Research abstract: BACKGROUND: A subset of patients reporting a diagnosis of Lyme disease can be described as having alternatively diagnosed chronic Lyme syndrome (ADCLS), in which diagnosis is on the basis of laboratory results from a non-reference Lyme specialty laboratory … Continue reading
ME/CFS & FM as functionally impairing as major diseases
Cort Johnson writes about research into Functionally Somatic Syndromes on June 1, 2015 in his blog Health Rising: The study urges the need for more research on FSS, a relatively neglected research area. Especially studies on a better understanding of the … Continue reading
Parent carers’ experiences with severe ME
Research abstract: Experiences of parents who care for sons or daughters with severe myalgic encephalomyelitis are rarely discussed within the literature. Narratives of parent-carers in Lost Voices from a Hidden Illness were analyzed using interpretative phenomenological analysis. This study aimed … Continue reading
Harpist Claire Jones, ME and Scarborough Fair
Welsh harpist Claire Jones talks about her journey with ME and the role of the song Scarborough fair in her recovery, in BBC Radio 4’s series Soul music: Scarborough fair broadcast Sat, 20 June 2015. It is available to listen … Continue reading
