Category Archives: News

Distinguishing between ME, CFS and CF

There is much debate on the diagnostic classification of Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS) and chronic fatigue (CF). Post-exertional malaise (PEM) is stressed as a key feature. A Thai study examines whether CF and CFS, with and without … Continue reading

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Health Minister talks about ME

On 25th April a number of AMs asked questions about services for ME, highlighting the difficulties patients have in finding healthcare from knowledgeable professionals in Wales. The Health Minister Lesley Griffiths replied: There is a lot of misunderstanding and more … Continue reading

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Assessment of energy metabolism by Serum Fluorescence Emission

Researchers from Witchita Kansas examined the metabolic component  of CFS, by determined serum NAD(P)H levels in 44 CFS patients and 30 healthy control  subjects by measuring serum fluorescence emission at 450 nm. It was directly correlated with serum coenzyme Q10 … Continue reading

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MRC funded research projects

Summaries of the current research projects funded by the MRC aimed at ‘Understanding the Mechanisms of CFS/ME’ have been added to the the section ‘MRC-funded research projects’ of the Medical Research Council’s CFS/ME page.  

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Is overall genome instability cause of ME/CFS?

Henry Heng, an American researcher has been funded by the National CFIDS Foundation adn Nancy Taylor Foundation for Chronic Diseases to discover whether overall genome instability rather than a specific molecular mechanism may cause chronic fatigue and immune dysfunction syndrome … Continue reading

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South Wales Echo on Post-viral fatigue syndrome

Dr Joanna Longstaffe describes Post-viral fatigue syndrome (PVFS) and advises: the most important thing for you to do is to rest up, maintain a healthy diet and general lifestyle and try to remain as stress free as possible to give … Continue reading

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Voices from the shadow – people with ME speak out

Voices from the shadows is a compassionate and moving exposé, bearing witness to the devastating consequences of psychiatric prejudice and medical ignorance about one of the most prevalent illnesses of the 21st Century. The film presents interviews with medical experts … Continue reading

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Chronic fatigue improves in first year with or without treatment

Researchers from London studied 222 patients reporting fatigue for over three months. They were given either ‘usual care’ – providing a booklet describing causes of fatigue and self-help techniques based on cognitive behavioural therapy – or NICE-approved therapies such as … Continue reading

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Ampligen trial shows benefits for long-standing debilitating CFS

A major study on the effects of Ampligen (Rintatolimod) on CFS  provides added proof of Ampligen’s efficacy in ME/CFS following America’s Food & Drug Administration’s refusal to approve Ampligen for CFS in Dec 2009. 234 subjects with long-standing, debilitating CFS … Continue reading

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Nursing Standard article on ME/CFS

Abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a debilitating illness that affects many systems of the body, particularly the nervous and immune systems. The condition affects all age, racial, ethnic and socioeconomic groups. This article focuses on the … Continue reading

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