Category Archives: News
ME/CFS epidemiological study in US
Abstract In previous qualitative research on Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), researchers have focused on the experiences of patients with ME/CFS in tertiary care samples. This qualitative study examined the natural history of people with ME/CFS (n=19) from a community-based … Continue reading
Bad sleep dramatically alters body
BBC News reports that a run of poor sleep can have a potentially profound effect on the internal workings of the human body according to UK researchers. The activity of hundreds of genes was altered when people’s sleep was cut … Continue reading
Views on the nature of CFS
Literature review abstract OBJECTIVES Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), has provoked much controversy and led to arguments between the medical profession and patient organizations. A particular focus for debate is the categorization of the condition … Continue reading
Carers & social care reform – Sylvia Penny interview
WAMES’ volunteer Sylvia Penny who cares for her adult daughter with ME, her adult son with asperger’s and her 90 year old mother, was one of the people interviewed on BBC Wales about the proposed changes to social care in … Continue reading
FINE trial treatments cost effectiveness assessment
Provisional results of the cost effectiveness assessment of the treatments used in the FINE trial (2010) have been published. The original trial found that: For patients with CFS/ME in primary care, pragmatic rehabilitation delivered by trained nurse therapists improves fatigue … Continue reading
Sleep disruption in CFS
Dr Michael Breus explores the research into the effects of CFS on sleep. Excerpt from his article: Disrupted sleep is a hallmark of chronic fatigue syndrome. Chronic fatigue is associated with a range of sleep problems, including: Excessive daytime sleepiness … Continue reading
WAMES & MWWMEG pool resources
On 1st January 2013 WAMES and the Mid & West Wales ME Group (MWWMEG) merged with WAMES. We already had a good working relationship with MWWMEG but we are excited about this opportunity to pool resources, learn from MWWMEG and … Continue reading
Carer Sylvia from WAMES & Text Santa appeal
Sylvia Penny from WAMES talks about what it is like being a full-time carer in ITV’s Text Santa appeal video. She is also interviewd on the Carers UK website. Support ITV’s text Santa appeal and help raise vital funds for … Continue reading
