Category Archives: News

How will health professionals learn about ME in Wales?   Decades of stigma, misunderstanding and struggle have been experienced by people with ME/CFS when they have attempted to access healthcare in Wales. Knowing this, and realising that no local medical … Continue reading →

#World ME day, 12 May – Take action!   Together, we are battling a global health crisis – help us let the WHO know A part of the World ME Alliance we are joining with nations all over the world, … Continue reading →

No Welsh strategy to support ME/CFS service development   Following a question in the Senedd and discussions with Welsh Government officials it is now clear that the Welsh Government have rejected WAMES’ request to develop an all-Wales strategy or Delivery … Continue reading →

Joint hypermobility & ME/CFS   Solve ME’s analysis of its You + ME Registry-based population (now Solve Together) sheds light on the complex interplay between joint hypermobility, ME/CFS, and Ehlers Danlos Syndrome. “Our results showed distinctive clinical characteristics in ME/CFS … Continue reading →

Physical Exertion in ME & the PEM/PESE effect, with Karen Leslie of Physios for ME   Rob Messenger shared his motivations for raising funds and awareness for ME by walking 500 miles over 100 days and climbing a total of … Continue reading →

The Inextricable Link Between ME and Long Covid: Solidarity with International Long Covid Awareness Day   As we observe International Long COVID Awareness Day on March 15th, WAMES and the World ME Alliance stands in solidarity with the millions worldwide … Continue reading →

Better care needed for young people with severe ME/CFS   A study of children and young people in the UK pre-pandemic found that investigation, referral and management of those with suspected severe ME/CFS do not always meet NICE recommendations. This … Continue reading →

Be part of the World ME Day 2024 campaign film As we approach World ME Day 2024, WAMES and the World ME Alliance (WMEA) invites you to be a part of a new short film that aims to shed light … Continue reading →

DecodeME results now due August 2025   The DecodeME team posted an update on 7 March 2024 DecodeME was due to be completed by August of this year Extraction of the DNA from samples has taken far longer than anticipated. … Continue reading →

ME/CFS NICE guideline based on a thorough review of the evidence   Criticisms by 50+ international researchers and clinicians of the ME/CFS NICE guideline were published in July 2023 and available on open access. In February 2024 a response from … Continue reading →