#DecodeME – sign up by 15 November 2023


It is now one year since the launch of the world’s largest DNA study for ME/CFS and the #DecodeME team have announced the final date to sign up.

MORE participants are needed!

and 4,000 spit tests are still to be returned.

The team say:

Thank you to everyone who has participated in the study so far. We couldn’t do it without you!

We are now in the final stage of participant recruitment and, if you haven’t already done so, you have until the 15th of November 2023 to complete your online questionnaire.

Click here to take part

At 5pm on the 15th of November, we will be closing our registration portal to both new participants and to those who have signed up but not completed their questionnaire.

Participants, who sign up and complete their questionnaire by the 15th of November deadline, and who are invited to participate in the DNA stage of the study, will be sent a spit collection kit. Final deadline for posting these back to DecodeME is the 31st of January 2024. As there can be unpredictable delays with the post, especially over the holiday season, please post your kit back to us as soon as possible and before this date, if you can.

This is the last call to sign up and be part of the DecodeME study.

Please join those in the ME/CFS community who are doing something extraordinary by taking part.

Almost 25,000 people have already signed up and completed their questionnaire, and almost 20,000 participants have also been invited to provide a DNA sample. This is great news, thank you to everyone who has participated!

However, we still need more people

and this is the last chance to be part of this ground-breaking study. So, if you, or someone you know, are 16 or older, live in the UK and have a diagnosis of ME/CFS, please do take part now to help us decode ME/CFS.

Finally, we currently have over 4,000 spit kits that have been sent out and not yet returned. If you have received your kit, but have not yet returned it, please send it back to us as soon as possible. If you have questions about returning your sample, then our FAQ page has a number of answers that might prove useful. Each sample returned will strengthen the results of our research, so we appreciate every kit sent back.

If you have been waiting more than three weeks for your kit, since receiving an invite to take part in the DNA stage, please contact the DecodeME team, email info@decodeme.org.uk team or on 0808 196 8664, and we will investigate and order you a replacement kit, if required. The final deadline for requesting replacement kits is the 15th of November 2023.

So, if you are yet to complete your questionnaire or haven’t yet signed up as a participant in the DecodeME study, but would like to do so, please visit www.decodeme.org.uk/portal before the 15th of November.

Thank you for supporting the study,

Warmest wishes,    The DecodeME Team

Read more:

Initial findings from the DecodeME questionnaire data published:

Being female, older and ill for longer increase the chance of greater severity

This entry was posted in News. Bookmark the permalink.

Comments are closed.