Dr Derek Pheby invites you to take part in EUROMENE research

19th October 2020

Dear fellow members of the ME community,

I wonder if I could, please, request your assistance. I am working with European colleagues in the EUROMENE collaboration, and we have been very successful in stimulating research into ME/CFS throughout Europe.

Researchers in Latvia and Italy have conducted fairly small-scale epidemiological studies, with the intention of producing an international comparison, and would like to be able to compare their results with data from the UK, where most of the epidemiological research into ME/CFS in Europe has been undertaken.

Epidemiology is the study of how often diseases occur in different groups of people and why.                             BMJ

I am very keen to encourage this development, as it is only through epidemiological research that we will be able to quantify the scale of the illness in Europe, which in turn will get added weight to our lobbying for increased resources both for research and for clinical and other services.

I have therefore developed a short survey instrument to enable collection of data which will facilitate the comparison my Latvian and Italian colleagues wish to make. This is necessarily limited in scope, because I am only asking the questions which have been asked in the surveys already carried out in Latvia and Italy. It’s therefore quite short, and it should be possible to complete it in under ten minutes.

If you:

  • are a UK resident,
  • have a medically confirmed diagnosis of ME/CFS, and
  • would like to participate

Take part in the survey https://www.smartsurvey.co.uk/s/GX4HMU/

Please feel free to send this link to anyone else who might be interested and may want to participate.

I would be grateful for responses by the end of October, please.

The survey is of course completely anonymous, but, if you would like to receive a report of this study in due course and leave your email address at the end of the survey, or alternatively email me at derekpheby@btinternet.com I will make sure that this is sent to you.

Yours faithfully,

Professor Derek Pheby, 

Chairman, Socioeconomics Working Group, EUROMENE

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