COST 15111     EUROMENE Final Global Conference

~European Network of Myalgic Encelophalomyelitis/ Chronic Fatigue Syndrome~


EUROMENE Conference abstracts are now available from presentations last week under the title Common strategy of research of ME/CFS,   March 12–13, 2020, Riga, Latvia


SESSION 1 – ME/CFS epidemiology

  • Epidemiology of ME/CFS in Europe: past, present and future, by Fernando Estévez-López, Kathleen Mudie, Luis Nacul, Jesús Castro-Marrero, Xia Wang, Inger Johanne Bakken, Andrejs Ivanovs, Nuno Sepúlveda, Elin B Strand, Joanna Slomko, Pavel Zalewski, Derek Pheby, Jose Alegre, Carmen Scheibenbogen, Evelina Shikova-Lekova, Lorenzo Lorusso, Enrica Capelli, Slobodan Sekulic, Modra Murovska, Eliana Lacerda
  • What do young people find helpful in their management? Findings from a long-term follow up study of 784 young people, by Katherine S. Rowe
  • Prevalence and characteristics of CFS/ME in Poland, by Joanna Słomko, Pawel Zalewski
  • Considerations of ME/CFS biobanks and bio-repositories within EUROMENE, by Kathleen Mudie, Fernando Estévez-López, Eliana Lacerda
  • HYPOTESIS: We underestimate the risk of chemicals in water and food in ME/CFS, by Henrik Nielsen

SESSION 2 – ME/CFS biomarkers

  • Biomarker in ME/CFS, by Carmen Scheibenbogen
  • Changed energy metabolism in patients with ME/CFS by Karl Johan Tronsted
  • Marker for Autoimmunity in ME/CFS, by Franziska Sotzny, Carmen Scheibenbogen
  • Chronic viral infections and ME/CFS Evelina Shikova-Lekova
  • HHV-6 reactivation mimics mitochondrial fragmentation phenotype as seen in the serum of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients, by Bhupesh K. Prusty


SESSION 3 – ME/CFS socio-economics

  • Problems in determining the economic impact of ME/CFS in Europe by Derek Pheby
  • Recommendations of the working group on the development of a Europe-wide consensus approach to the economic evaluation of ME/CFS; questions and answers by Derek Pheby
  • Investigating the availability of data on ME/CFS patients in Latvia by Diāna Arāja, Uldis Berkis, Andrejs Ivanovs, Asja Lunga, Modra Murovska
  • Incorporating the patient perspective when estimating the economic impact of ME/CFS by John Cullinan


SESSION 4 – ME/CFS clinical research

  • Overview on works done during COST action and presentation of recommendations by François Jérôme Authier
  • Advances in Research on ME/CFS by Vicky Whittemore
  • Diagnostic criteria for Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS) – Recommendations from the EUROMENE’s Clinical Working Group Eliana Mattos Lacerda, Ruud Vermeulen, Jerome Authier, Luis Nacul, Carmem Sheibenbogen, Jean-Dominique de Korwin, Uta Behrends, Patricia Grabowski, Jose Alegre Martin, AnneMarit Mengshoel, Ingrid Hellang, Henrik Nielsen, Jonas Berquist, Pawel Zalewski, Jesus Castro-Marrero, Fernando Estévez-López, Modra Murovska
  • Cardiopulmonary Exercise Test in ME/CFS: Why, How and When? Ruud C. W. Vermeulen
  • How Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Progresses: The Natural History of ME/CFS Luis Nacul, Shennae O’Boyle, Luigi Palla, Flavio E. Nacul, Kathleen Mudie, Caroline Claire Kingdon, Jacqueline Margaret Cliff, Taane G. Clark, Hazel Marguerite Dockrell, Eliana Mattos Lacerda .
  • Patients from the French Chronic Fatigue Syndrome association fulfilled Systemic Exertion Intolerance Disease (SEID) criteria, but disagreed this new denomination by Julien Campagne, Isabelle Fornasieri, Barbara Andreani, Françoise Bécavin, Monique Eginard, Jean-Dominique de Korwin
  • Phenotyping cognitive impairment in adult patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Mehdi Aoun Sebaiti, Gounden Yannick, Hainselin Mathieu, François Jérôme Authier
  • Including the housebound patient severely affected by ME/CFS in research: a compassionate approach Caroline Kingdon, Eliana Lacerda, Dio Giotas, Jack Butterworth, Luis Nacul
  • The impact of whole-body cryotherapy upon cognitive function in myalgic encephalomyelitis/chronic fatigue syndrome patients. Preliminary studies by Sławomir Kujawski, Joanna Słomko, Jacek J. Klawe, Małgorzata Tafil-Klawe, Julia L. Newton, Paweł Zalewski
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