Communication RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020)
The final scope and equality impact assessment for this NICE guideline have now been published [Oct 16th], along with all the stakeholder comments that were received during consultation and our responses to these comments: documents
We would like to thank you for your continued involvement and interest in this guideline. The comments received during the consultation period helped us to develop and refine the scope.
Your organisation [WAMES] has been identified as a key stakeholder for this topic; we will contact you again when the draft guideline is released for consultation and ask that you please prioritise sending us your comments.
Provisional Schedule
Draft guidance consultation 21 April 2020 – 02 June 2020
Expected publication 14 October 2020
Committee members [more appointments to come]
Chair
- Peter Barry Consultant Paediatric Intensivist, University Hospitals of Leicester
Vice Chair
- Ilora Finlay Consultant in Palliative Medicine, Clinical Lead for Palliative Care for Wales,Velindre NHS Trust, Cardiff
Core members / Members
- Secondary care paediatrician: Theo Anbu (Alder Hey, Liverpool)
- Physician with an interest in ME/CFS: Mike Beadsworth (Consultant
Infectious Diseases, Liverpool) - Physiotherapist: Joanne Bond-Kendall, Bath (MAGENTA & FITNET researcher)
- Social worker: Tony Crouch (Social work advisor – works with 25% Group & TYMES Trust)
- Psychologist: Jo Daniels, Bath (Interests: CBT, anxiety disorders)
- GP: Luis Nacul (leads the CureMEteam and the UK ME/CFS Biobank)
- Occupational therapist: Susan Watson, (Leeds & West Yorkshire CFS/ME Service)
- Community paediatrician:
- Dietician:
- Epidemiologist:
- Nurse with specialist interest in ME/CFS:
- Community children’s nurse:
- Lay member: Saran Bonser
- Lay member: Sally Burch (http://sallyjustme.blogspot.com)
- Lay member: Nicola Kidby
- Lay member: Adam Lowe (#MEAction)
- Lay member: Dorinda Jack
